Thanks Famdamily - is it possible to have had polio without having had a prior paralytic attack? I mean can you have had an intial bout of polio but without paralysis, just a fever-like illness...? Just wandering as Dads symptoms are more like post polio but he cannot recall having had any...
Thank you to again Wright,
I will ask Dad's neurologist for a second opinion or further EMGs. It's helpful knowing that others feel there might be further tests that need to be done before an official PMA or MND/ALS diagnosis is given.
Just out of interest, I have been reading about post...
Thank you Famdamily for your kind wishes - in your experience, have you ever had any difficulties with breathing? Have your lower back issues had any impact on walking (Dad can walk, he just feels that when his back "goes", he might fall)
I am so fortunate that whatever dad has, it is a slow...
Thank you for getting back to me Wright - really value your thoughts,
Yes he has normal muscle power in his legs and left arm, he does have does left shoulder weakness and a weak lower back but it's nothing compared to his right arm and hand. He has fasticulations everywhere - does that occur...
Hi everyone - I just tried posting on the PMA forum but havent had any responses as yet so thought i'd re-post here...
I'm just wanting some advice and support and hoping for some help...
My father has recently been diagnosed with MND after 7 years of asymmetric muscle weakness and atrophy...
arm
atrophy
back
bipap
chronic denervation
confused
dad
diagnosed
diagnosis
falling
father
health
increase
ivig
mnd
muscle
muscle weakness
neurologist
new diagnosis
newly diagnosed
newly diagnosed mnd
onset
oxygen
pma
power
progression
support
symptoms
tests
wanted
weakness
wheelchair
Hi everyone - just wanting some advice and support and hoping for some help...
My father has recently been diagnosed with MND after 7 years of asymmetric muscle weakness and atrophy just in his right hand and arm. He was originally diagnosed (7years ago) with multfocal motor neuropathy but as...
arm
atrophy
back
bipap
breathing
chronic denervation
confused
dad
denervation
diagnosed
diagnosis
falling
father
health
increase
ivig
mnd
muscle
muscle weakness
neurologist
new diagnosis
onset
oxygen
power
progression
support
symptoms
tests
wanted
weakness
wheelchair
Sorry I left something out....he did see a breathing specialist who was the first one who queried the diagnosis of Multifocal motor neuropathy as he said that breathing was not involved with this condition although from my reading, I know that although it is rare....MMn can effect breathing...
Sarah and Helen,
Thank you so much for your responses, I cant tell you how much reading this forum has helped me in managing some of the feelings I've encountered in response to my Dad's illness.
I'm trying hard to be strong and on my good days feel that this journey is making my family...
Hello everyone, I'm very new to all this so forgive me if I get any of the terminology wrong. I've been reading your posts for a little while and would really value and advice or support you may have... :) I'm finding things very hard at the moment....
My dad was diagnosed with multifocal...
ability
advice
als
als symptoms
als?
arm
atrophy
breathing
dad
decline
diagnosed
diaphragm
emg
family
help!
improvement
info
ivig
mmn
reading
reflex
respiratory
scared
shortness of breath
sleep
sporadic
support
swallowing
symptoms
symptoms?
tests
weakness
wrong
Hello everyone, I'm pretty new to all this so forgive me if I get any of the terminology wrong. I'm finding things very hard at the moment....
I'm not entirely sure how to use the forum but have lots of questions i'd like to ask...not sur e how it all works! :)
Look forward to speaking soon...