Recent content by lizzie11957

Very cool Barry. Thanks for sharing!

I'm so sorry. It was evident through your posts that you loved and cared for him deeply. Just remember, true love never dies. You and your son are in my thoughts and prayers.

Blurbs.com. You can write a book or create a scrapbook. When you're finished they'll create the book for $30.00 and mail it to you.

So sorry. Stay strong. Your husband needs you to do what's best for him. Doesn't sound like going to the funeral would be good for him or you. You are taking such good care of him. What a blessing. (((((hugs)))))

I have Bulbar Palsy. According to my doctor, it's ALS. I guess the onset is in the bulbar region instead of limb, but eventually it will move to the limbs. Sorry for the bad news.

They don't say not to talk about it. I just don't want to go public about it. Mostly because they can decide not to do it right io to the day of the surgery. I, of course, have discussed it with family and friends, but just don't feel comfortable announcing it on Facebook. What is your FB...

Signed and shared

Yes. I'm on Facebook. Liz Jennings-Jones in Centerville, Georgia. Friend me. I'm not discussing the stem cell surgery publicly, but message me.

Jim, I was diagnosed with PBP in October of 2010. I think the first year is the hardest. I am a teacher and continued to work until just this month. I have no voice and communicating is difficult and often frustrating. Here are some things that helped me. When having a conversation with...

Go to a neurologist who specializes in ALS. There is no one test that can determine if you have ALS. A competent neurologist with ALS experience can give you a pretty confident clinical diagnosis.

Hi NC Girl! I too am in line for the stem cell surgery at Emory. I have Bulbar Onset - dx at Emory in October 2010. I am tentatively scheduled for March. If you'd like a friend to share experiences with, email me at. [email protected]. (((hugs)))

I had a normal EMG, yet was diagnosed with bulbar onset at Emory ALS Clinic. I have progressed as expected so I have no doubt the diagnosed is correct. I have read some posts which claim clean EMG= no ALS. Unfortunately, that isn't true.

Middle one:)

Joanna, I'm so sorry about your mom. I have a teenage daughter and worry about her constantly. Know that a mom's love never dies. She will always be with you. (((((hugs)))))

Frustration: can no longer chew or swallow solid food Blessing: can eat as much ice-cream as I want. Totally guilt free!