Recent content by LizT

  1. LizT

    Any possible way this is not ALS?

    these supposed ALS symptoms youve had for what, 12 years? If it were ALS, quite frankly, you'd be dead. And loooong dead. If not, you'd have complete paralysis in at least some parts of your body. Has anyone ever explained to you that in order to have ALS you must have multiple medically...
  2. LizT

    How did you send your child to college?

    Financial aide, grants and loans make it possible too
  3. LizT

    depressed

    I starting taking care of my PALS (my fiance) when I was 24. He died the day after I turned 29. In that time, I started getting gray hair, I smoked, I put on 40lbs, I could hardly ever relax, and i was always tired. And this was only taking care of him for 8 hours a day. I got to go home at the...
  4. LizT

    I understand, but don't know what to do...

    It is NOT against the law to have the trach removed. However, a dr MUST do this. You cannot legally. Once a person is on mechanical life support, it is their right to have it removed at any point. Unless the person is not of sound mind to make this decision. Im sorry to put this so bluntly, but...
  5. LizT

    Getting harder to see my mom with als

    My fiance lived with ALS for ten years. I was with him the last 4 years of his life. My comment comes from the "other" side... As a caregiver, I saw my honey in emotional pain on a daily basis. This pain was because everyone, including his children, abandoned him because it was too hard for them...
  6. LizT

    Do you take Ativan?

    @Sunnyflmom- in my personal, not medical opinion, i would suggest using the trilogy while she sleeps if she is sedated. Yes, those meds can and do affect breathing.
  7. LizT

    Comment by 'LizT' in media 'Annie, the bride of my youth, Dec 2010'

    Absolutely beautiful
  8. LizT

    Comment by 'LizT' in media 'Me again'

    Absolutely LOVE the stone wall
  9. LizT

    Comment by 'LizT' in media 'Cute and playful too!'

    Oh how I miss our Annie.
  10. LizT

    Do you take Ativan?

    Dani- how long has he been on it? If he just started recently, there is a good chance the effects will lesson after a bit. Its pretty common for people to be "knocked out" by it for awhile. Just curious- Why is it bad for him to be in a very deep sleep?
  11. LizT

    Metamucil thru the peg tube?

    If the Metamucil is mixed with water and put through the tube right away, it could be ok. You could always mix some up and see how long it takes before it thickens. As said, make sure to add at least 8oz of water per serving, and please please please make sure to flush the tube a couple times...
  12. LizT

    erectile dysfunction.

    Viagra or Cialis. Dont think ALS causes this... either way- the pills generally work. Not sure of your age, but that may have something to do with it as well as the older a man gets, the more his testosterone levels drop. You could have your levels checked to see if this is an issue. Best of luck.
  13. LizT

    poop problems again!

    We used a variety of things every day to prevent. As previously stated, it is much easier to prevent this issue than it is to treat it. Ray took a stool softener, a vegetable softener, a teaspoon of bran, half a dose of Milk of Mag, about a quarter cup of either prune or apple juice, and as many...
  14. LizT

    Best solution for saliva?

    Patches, Atropine drops, meds with side effects of dry mouth- ie- Amitryptoline. Best of luck.
  15. LizT

    Thank you for wishing me a Happy Birthday. I appreciate that.

    Thank you for wishing me a Happy Birthday. I appreciate that.
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