Recent content by Littletsunshine

Pat- sorry for my overreation. I with think of your kindness next time someone makes a joke and maybe my sense of humor can be found again. Thank you. Normal me would have probably laughed and commented back. Accepted your friend request, i need more humor in my day.

I think i may have lost my sense of humor. (Thanks gregk for pointing that out) I appreciate all the responses and honestly did not intend for things to go in the direction they went in. Pat i can see now no harm was intentended, please excuse my overreaction. Im still in a whirlwind of fear...

Als was suspected because the sps hit hard and rapidly progressed. I have fallen so many times ive broken 7 bones, sprained both ankles and my knee. Im sorry if i offended someone but clearly asking about a feeding tube i did not expect off handed humor when all this is going on.

for those who asked SPS plus ive lost the use of my left side 3x. Ischemic strokes are thought to be the cause and each time my cns seems to freak out. I had tachycardia the first time, the third time i had bradycardia and when i would fall asleep the code team would keep rushing in because my...

Patoyeah Your comment is not appreciated nor taken with the humor the moderators have claimed it was made in. I already feel alone and terrified and am facing leaving my disabled 4 year olds motherless. I was scared to ask questions and this was my first and last post now asking for help. Hope...

Thanks for the response..for some reason my blog post didn't save. I need to find a bio spot but will have to fight it another day.

I have a blog post that explains my current situation(not als but other rare Nero condition) but anyone get a Mickey vs peg? I have autistic 4 yr olds that climb on me and I fear peg being ripped out.. Thanks