Recent content by LittleKnight

I'm going to ask my doctor for this on Thursday. Just curious though, does thinner mucous make for a greater risk of aspiration, or less?

Diagnosed early this year, with moderate symptoms presenting. I'm now considering getting laser eye surgery (LASIK) to correct my nearsightedness. (Holding and cleaning my eyeglasses has become a problem.) They say it's a short, safe, simple procedure, but does anyone have any experience with...

I've just said prayers for you and Tom. Bless you for your caregiving and faith.

I do make sure to fully respect the 3-hour window. I have a breakfast between 9 and and 10, take the Riluzole at 12 or 12:30, and don't eat again until an hour later. Then I eat as much as I can until 10pm, and take my 2nd dose right before bed at midnight. It's really pretty easy to stick with...

Call me crazy, but I'm taking my Riluzole very seriously. It's the only arrow in the quiver, as far as medicine goes, and every doctor I've met has insisted I take it. I'm not cutting corners with my diet or exercise, so I'm not going to take any chances with this either. There are miniature...

Hi Vince, The iPad Mini speaker is pretty soft (I have one, so I know). But there are wireless external speakers you can use. You connect to them by the software application called Airplay (I think it came pre-installed on the Mini). Here is a link to a selection of official Apple speakers...

There aren't many things that help with ALS. What we have, we should use, and we should use them according to the instructions. If they say to keep it in that temperature range, I think we should. My pharmacist tells me that big temperature changes can indeed ruin pills, and in a lot shorter...

How does everyone store their Riluzole (Rilutek)? It has a pretty narrow temperature range for storage, just 68-77° Fahrenheit. I don't know what I'm going to do. It's summertime in NY now and the weather can get very hot and humid... it's been nice and cool through the present day but that will...

Thanks for the advice on avatars, Janelle – I finally got it! :D

Hi Shifty, I was given Valtrex (an antiviral) today, but it's awfully late in the game (two weeks in!) to start that. Still, it *might* help some, so I'm going to use it. I also got Gabaprentin which is supposed to lessen the neurological complications that can arise, so ditto for using that...

Finally getting back to this now, because I've been completely flattened by these headaches: tomorrow night will make two weeks straight of pain. I went to a neurologist; then an ENT; and finally this week I went to my first good ALS clinic. Not only did they give me a deeply encouraging...

Thank you all for the continuing replies. I agree, this forum is full of hard-to-find information, rapid responses, and friendly folks. Thanks again!

Welcome Strongman. Looks like we both started feeling symptoms around the same time (I was in November), and we both left our jobs recently. I hope you'll stay strong with me, and we can both do our part to support this forum. Despite my name, I am 6 feet tall and used to be 205 pounds when I...

Hi Shifty, welcome to this group. I'm new here myself, and still more of an advice-taker than advice-giver, but in regard to this: let me tell you with certainty: you need to get involved with a clinic (one that you're comfortable with) as soon as possible. Don't wait for them to get back to...

Thank you for your replies. Mercifully, the headache seems to have lessened today – finally! I'm told that Prednisone builds up in the system the longer you're on it, so maybe I'm getting a cumulative effect after three days. Still, that side of my head remains tender to the touch and...