Recent content by Lita31

Continuing from last message: ....Swallowing difficulty is a big first symptom in many people, as is joint/muscle weakness. These disorders can be difficult to diagnose, but are manageable and treatable once found. I know you are going to get another EMG this week and I am hopeful that it will...

Hi Amy, Thank you so much for the support. I wanted to share something I have come across this week. My Mother stated to me that on my Father's side of the family there was a connective tissue/muscle type autoimmune disorder. Many of them apparently had to have intermittent treatment for it. I...

I'm sorry to hear about your Father in law, stress on top of all of what's going on is overwhelming I'm sure. I am trying to do the same thing, I have seen quite a few specialists in the last month. I am going to a neurologist next week at Barrow Institute in Phoenix. I also am seeing a second...

Hi Amy, Just wanted to check on you, how are you doing? Any news? I am currently trying to find another Neurologist because I am now having hand coordination and strength issues as well when using my hands. Still progressing. Sending good thoughts your way.

Thank you Nikki for that info and assurance, I will pursue this next Neurology appointment as quick as I can. I feel maybe my current doc might not be concerned because of my age.

I am sorry to be back asking a question before I have a diagnosis, but I saw my Neurologist again as I have not stopped regressing and he felt there was no need to do another EMG or testing. He didn't perform a Neuro exam the last two visits over the last month. Over the last week I have started...

Thank you both for your responses, I truly appreciate your kindness and for taking the time and energy to answer. I won't be posting again unless I get a firm diagnosis.

Hi, Thank you Amy, I am trying to not give up and keep on forcing the issue with medical providers. I'm just hoping I get answers before something worse occurs. I really appreciate the support. I am sending good vibes your way.

Hello, Unfortunately I am feeling worse as the days pass. I went to the Rheumatologist yesterday as planned, he basically told me he doesn't know what it is based on the labs he reviewed from the Neurologist. He said my inflammation markers are up high, but that it doesn't point to anything...

Btw I forgot to add that they did a ESR test and a CRP protein test and both were high. ESR at 49 and CRP at 19.1. I read that these usually point to inflammation in the body and CRP specifically to muscle. Thank you both so much for your responses, I am doing my best to keep moving forward...

Hello, I wanted to update on my current situation. My symptoms started 8 weeks ago, I had an EMG/Nerve conduction test. The doctor said it was not indicative of any issues. But I saw the Nerve report before leaving and apparently my popliteal nerve in left foot had no response and the tibial...

Thank you both for your replies, I so deeply appreciate your help. I will do my best to figure this out. Have a wonderful holiday and good evening. Thank you, Carly

I hate to post again, but I am truly terrified today. I am still experiencing the strange muscle weakness in my chest so severe I have trouble getting full breaths. Today trying to do last minute shopping had me struggling. I woke up with the same ongoing extreme muscle weakness everywhere...

Hi Laurie, Thank you so much for the reply. I also forgot to mention that my face gets weak when eating or talking, even smiling for too long, to the point where it shakes. I also have had a hoarse voice for the last 2 months that acid reducers prescribed by my PCP hasnt seemed to help. I...

Please tell me if this sounds familar to any of you... I am a 31 year old mixed race female and 2 months ago I started to have trouble swallowing, then trouble breathing came next, soon all the muscles in my body hurt and felt very weak. The weakness and pain started with my neck, jaw and upper...