Recent content by Lisa Lane

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    HELP with new symptoms

    I started having symptoms in Oct. 05, officially DX's in Mar. 06. It started in my leg and now both legs are involved and now my right arm is getting weaker. For about 3 weeks now I have been having sensory symptoms. My face and my head feel numb, by legs and feet feel numb and so does my...
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    Question about heat

    Thanks everyone! I did get a heated blanket and boy was it awesome last night. We are remodeling the bathroom and we decided to do a whirlpool bath and a roll in shower. I guess I will figure out the getting in and out of the bath when the time comes. Lisa:-D
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    Question about heat

    I have been using a heating pad at night on my arm and it seems to help. It seems to me that I read somewhere that heat is not good for ALS. Does anyone know? We have had a few days of cooler weather and if I get cold my legs cramp up like crazy? I am thinking about getting an electric...
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    Frequent urination with ALS

    I am 47 with ALS and I too had problems with frequent urination. I tried every drug out there. They made my mouth so dry I could not swallow. I decided just to deal with it. My mobility is limited so I just decided to wear diapers. I just don't care. I found it very hard to try and get up...
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    Porch Lift and Bathroom Pictures

    Rick, We are from Memphis, I think I mentioned it earlier, and we love our ribs dry! We are working on our bathroom now, so I will send pics later. Lisa
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    Leg Brace

    When I wore my leg brace I bought mole skin in the foot section of the drug store. and lined the back of my brace with it. I took an exacto knife and cut out the vent holes to match my ones in the brace. This allowed me to wear my brace without long socks. I just used the no show socks with...
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    Fasciculations

    Terri, Does LB complain of a dry mouth? I can't seem to take it at night because my mouth becomes so dry I feel like it is stuffed with cotton and I feel like I can't breath or swallow. I am wondering if these symptoms will go away. The drowsiness is also very pronounced. If I take it during...
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    Porch Lift and Bathroom Pictures

    Hi Rick, We have a smoker that is almost like yours. We are Memphis born and we LOVE BBQ. We did a 125lb pig for the 4th of July and fed about 75. We will probably do it agian in Nov. We love it too. And I hope Al gets his pics up and running because we are doing or bath room and building a...
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    Fasciculations

    Thanks, I will ask the Dr about it. As for enjoyment, a great Cab. goes a long way. Last year we tore out the closet underneath the stairs and made it into a wine closet. We have about 250 nice bottles of red wine. There is nothing better than a good wine! It is one of the most wonderful...
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    Fasciculations

    I guess what I was trying to say was that the drugs are doing much for my stiff legs. My Dr. seemed to think that I still had strength, but that I just had stiffness. So, he increased the baclofen and added the new drug. But, I can't tell. My legs are still stiff and seem to be getting...
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    Fasciculations

    Thanks! I never thought of it like that before. I still have muscle but what I don't have is movement. My legs are so stiff, they won't bend. I feel like I take too much Balcofen, but I am almost maxed out on the dosage. They have added a new drug called Tizanadine. Has anyone used this...
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    Fasciculations

    Hi everyone, I have a question about Fasciculations. For a while they stopped. But now I feel like popcorn is going off all over my body. I thought I read that they are maybe a sign of a good thing. Does anyone know? Lisa
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    Stairs and stairlift for people with als

    Hi, we are trying to solve the same problem. I found the best price for a vertical platform lift at lift-world and another good site was planetmobility. We are going to make a purchase soon. We have to go up 9 feet. I had one place suggest using 2 wheelchairs. One for the upstairs and one for...
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    Rilutek

    Thanks everyone for the advice. I am going to start next week.
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    Family Support Issues

    I know exactly what everyone is talking about. Family and friends don't come or call. At first you feel so isolated. But, then you start to realize that people really don't know what to do. My favorite is the standard card that says " if you need anything, please call". What a cop out! A...
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