lisa g's latest activity

  • lisa g
    lisa g replied to the thread Neurofilament Light Chain test.
    Thank you for the links.I was in a study with Dr Benatar for a number of years where he did monitor my levels in the NFL test...
  • lisa g
    lisa g replied to the thread Neurofilament Light Chain test.
    Nikki, spoke with my neurologist yesterday at clinic about NFL numbers. He said that they're still figuring out the relevance of the...
  • lisa g
    lisa g replied to the thread Botox for Bulbar ALS.
    Denise, I'm curious do you have a feeding tube or are you still able to eat by mouth? I have gotten Botox injections into my salivary...
  • lisa g
    I started out with limb onset and developed Bulbar symptoms but so far haven't had any respiratory issues. I second what Nikki is...
  • lisa g
    lisa g replied to the thread Neurofilament Light Chain test.
    I'll let you know what my neurologist says next week. He did email that the test is new for ALS and they're still figuring out the...
  • lisa g
    Has anyone been getting Neurofilament Light Chain blood tests? I just had my 3rd one and am wondering how they use this as a biomarker...
  • lisa g
    lisa g replied to the thread Botox for Bulbar ALS.
    I get Botox injections every 3 months and actually scheduled for my 3rd round next week. I take the injections for excess saliva. It...
  • lisa g
    lisa g replied to the thread Inflation or Greed.....
    I've been meaning to comment on this post. It's nothing more than greed, corporate, political and personal. The newest one is the fast...
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  • lisa g
    lisa g replied to the thread Radicava Coverage.
    From my understanding, I get my Radicava from CVS Caremark and they will only dispense the drug in 1 month intervals due to expiration...
  • lisa g
    lisa g replied to the thread Relyvrio fails phase 3.
    They haven't pulled it yet, CVS CAREMARK called today to renew the prescription and still had it paid through insurance. I spoke with my...
  • lisa g
    lisa g reacted to lgelb's post in the thread New Hospital Bed with Like Like.
    That would actually be the preferred configuration from the pressure relief standpoint, but you will have to judge whether it's...
  • lisa g
    I received my hospital bed. I was able to get a full electric one. I also got a gel overlay for it. My problem is that I'm short and the...
  • lisa g
    lisa g replied to the thread Couple questions.
    Bastion, now you can put your fears to rest and get on with enjoying your life.
  • lisa g
    lisa g replied to the thread Breathing issue.
    What brand are you using? Your taking in over 2,000 calories a day. Did you have a problem with keeping weight on? Kate Farms 1.4...
  • lisa g
    lisa g replied to the thread Breathing issue.
    Colleen, your taking 2 cartons per feeding? That's an awful lot for one feeding. Did your dietician recommend 2 cartons? If the cartons...
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