lisa g's latest activity

  • lisa g
    lisa g replied to the thread Radicava Coverage.
    From my understanding, I get my Radicava from CVS Caremark and they will only dispense the drug in 1 month intervals due to expiration...
  • lisa g
    lisa g replied to the thread Relyvrio fails phase 3.
    They haven't pulled it yet, CVS CAREMARK called today to renew the prescription and still had it paid through insurance. I spoke with my...
  • lisa g
    lisa g reacted to lgelb's post in the thread New Hospital Bed with Like Like.
    That would actually be the preferred configuration from the pressure relief standpoint, but you will have to judge whether it's...
  • lisa g
    I received my hospital bed. I was able to get a full electric one. I also got a gel overlay for it. My problem is that I'm short and the...
  • lisa g
    lisa g replied to the thread Couple questions.
    Bastion, now you can put your fears to rest and get on with enjoying your life.
  • lisa g
    lisa g replied to the thread Breathing issue.
    What brand are you using? Your taking in over 2,000 calories a day. Did you have a problem with keeping weight on? Kate Farms 1.4...
  • lisa g
    lisa g replied to the thread Breathing issue.
    Colleen, your taking 2 cartons per feeding? That's an awful lot for one feeding. Did your dietician recommend 2 cartons? If the cartons...
  • lisa g
    lisa g replied to the thread Concerned About Bulbar ALS.
    You can whistle? I have Bulbar involvement and am lucky enough to be able to secure my lips around a straw, whistling would never...
  • lisa g
    lisa g reacted to Jazyjane's post in the thread Wheel chair questions with Like Like.
    These are all great responses I got a pwc from my ALS clinic to use while my Permobil was fitted and ordered. This allows me tlo have...
  • lisa g
    lisa g replied to the thread Bipap question.
    Thank you Nikki, I was just posting the same message as you. Sleep apnea was my first symptom of ALS though I didn't know it at the...
  • lisa g
    lisa g replied to the thread Bipap question.
    Try using a different mask. Like you I deal with excessive saliva. I could never use a mask that covers my mouth. I use a ResMed AirFit...
  • lisa g
    lisa g replied to the thread Worried about bulbar symptoms.
    Mommax3, one reassuring thing on your side is that Bulbar symptoms do not come and go and there is no pain involved just failure. I have...
  • lisa g
    lisa g replied to the thread Constipation.
    Colleen do you have a bidet seat on your toilet? You can use the force of the water flow to stimulate the area and almost work as an enema.
  • lisa g
    lisa g replied to the thread Bulbar als.
    Paulbx, does dairy products effect your saliva? I find dairy products increase mucus and saliva. I was vegetarian for a long time and...
  • lisa g
    lisa g replied to the thread Bulbar als.
    I'm right there with you SteveO. In April it will be 5 years since my official diagnosis though I was symptomatic since 2016 and didn't...
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