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  • Glad I could be of some help to you. The problem with most medical websites when they talk about ALS is that they don't differentiate between the early stages and the later stages of the disease. They give a list of symptoms, but they don't emphasize that it starts very small and progresses relentlessly. So, please follow Sadiemae's advice and check out the BFS forum. They know exactly how you feel. Good luck.
    Read all of it. It talks about perceived weakness vs clinical weakness and How fatigue can set in because of all the self testing. Go to aboutbfs.com and read for yourself.
    Read the thread I started today. BFS or ALS. A Must read if you twitch! You need to go to. aboutbfs.com. You have BFS.
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