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  • Hello Lindsay,
    We have not heard back from you and thought we would post our response to you here as well.

    First, I want you to know that I understand what your boyfriend is going through. The fact that he is a technical nut will help. The fact that he has you will also help.

    You have questions, please feel free to ask whatever you'd like. We need information before we can suggest solutions that best suit his needs. Let's just start with contact information.

    My name is Larry and I have ALS. You may also get responses from my son, Mike or from Tamarra who ensures we respond to or keep in contact with everyone we need to.

    We will help you and your boyfriend and we will keep it affordable and totally transparent to you. Please start asking questions, Lindsay. When you feel more comfortable, you can talk to us on the phone if you'd like.

    Looking forward to hearing from you and helping your boyfriend achieve more independance and improve his quality of life.
    Later, Larry
    Hi Lindsay,
    I saw you boyfriend was dx 6 years ago, how is he doing now because I read in last post he had some more problems?
    I read it was a difficult dx at the time, how come? Can I ask what is initial symptoms were and how long it took him to get diagnosed?

    Love Elise x
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