Recent content by lindasue

thanks everyone for all your insights. i've come to realize that my brother is not asking for more help than he needs, he really is progressing super fast and really needs the help. jimmy was just diagnosed 8 months ago but i now brush his hair, help him dress, help him eat, brush his...

i didn't mean to sound like i was complaining, not at all. what i meant to say / ask is "should i encourage him to try to do more or is he doing everything he is capable of?" i don't want his lack of strength to be because i do everything for him. i want whats best for him. thank you all...

my brother Jimmy (54) was diagnosed with ALS this past July (2007). his was a fast onset and seems to be a fast progression. he lives in st louis, i live in springfield, il. the cold weather affects him very badly, so he is staying with me and sometimes with another sister (also in...

thanks guys! i will look into both the key aids and the electronic dead bolt.

I haven't posted for a couple of months. My brother Jimmy continues to get weaker, although he is still walking (very stiffly), and driving, and living alone, although for how much longer I'm not sure. Anyway, as new things occur that Jimmy can no longer do, we all (the family) put our...

My Brother Jimmy heard from his employer that his insurance is going to cancel him. Jimmy had his ALS symptoms in February. He honestly did not know that his speech was slurred (no one told him, we all thought he'd been drinking) and he thought the twitches were a result of a really BAD...

Lorie I'm so sorry about your brother. Maybe he needs a new anti-depressant. I'm healthy, and I know that when I'm depressed its easy for me to be a major crab and scream at people. I take anti-depressants (5 years now, mothers death, menopause, married to a man 13yrs younger with 2...

my brothers appointment Thanks Gina for thinking of us. It went well, all things considering. First off I'd like to say what a wonderful place that clinic is! We talked to many people that morning and the attitude of everyone there was "welcome, we're so glad you've found your way to us...

going to Barnes on Thursday Gina, My brother has an appt with Dr. Al-Lozi this Thursday at 9:15. My sister and I are driving to St Louis to go with Jimmy. We're hoping and praying there'll be a little bit of good news. Just a little. We don't want to be too greedy. :-) Linda

Thank you Gina for your insight. Maybe we'll see each other at Barnes some day?

Irma, Thank you for sharing your story. I hope my brother remains as steadfast as your son Rudy did in fighting this. Of all the responses that I've read so far, yours touched me the most. You shared your anguish with me, and I appreciate it more than you'll ever know. Please keep in...

response to Gina's questions... My brother is being referred to Dr. Pestronk at Barnes. We are waiting for them to review his case and call him for an appointment. I try to stay on top of this (at the risk of being labeled a pest), but so far the people at Barnes have been super nice! My...

Hi, as you may have guessed from my ID, my name is Linda. My brother Jimmy was diagnosed with ALS yesterday. His doctor said that because his ALS has been a particularly rapid onset "version" of ALS (a few months) that he expects the progression of the disease will be equally as rapid, and...