Recent content by LinCan

  1. L

    fasciculations wont stop

    Hi Al, not wanting to disrupt thread, but for the first year or so of tests, I had 2 "clean" EMG's, and they were looking at PLS. (These were from 2different places). Then I was booked in a clinic, and to have a third where the denervation and reinervation showed up. Progression is supposed to...
  2. L

    fasciculations wont stop

    Hi, Shawn. I found that the random fasciculations were a lot worse early on (before I was diagnosed and they were getting clear EMGs) than they were months later. They did disturb my sleep at times. Now I just have them once in a while, not too persistent. I so far don't have serious...
  3. L

    Breathing issues

    Thanks for the helpful info. I have primarily UMN symptoms, but my torso seems to be progressively weaker, not my facial muscles as yet. I have had a degree of sleep apnea for some years. Linda
  4. L

    Message from ottawagirl

    Hope you're starting to feel much better, Elaine! Wishing you the very best, Linda.
  5. L

    In loving memory of my husband

    My sincere sympathy for your loss. May your wonderful memories bring you comfort. Linda
  6. L

    Breathing issues

    Thanks, Jane and Max. Caring folks like you make the journey a bit easier, knowing that someone understands. I hope you are both doing as well as possible, with some great moments. Linda
  7. L

    anyone seen/heard from Paul (dbltree)?

    Yes, he has posted on winning the fight. I hope he's doing better. Linda
  8. L

    anyone seen/heard from Paul (dbltree)?

    Hi Max. I was concerned as well, so checked the other website, and apparently he has been having some problems with extreme pain. Hope things are improving. Linda
  9. L

    Breathing issues

    Thanks , Igelb, for that excellent response. I really am having a variety of issues now with mobility, being inside for 6 months (no lift), and very little medical help. I'm scheduled to go to a nursing home soon, so am struggling with anxiety and depression as well. Just trying to keep my...
  10. L

    Breathing issues

    Hi. I know this has been dealt with in the past, but have some concerns. Have started to feel short of great at times - no morning headaches yet. Breathing last tested about8months ago. I'm in a community without a neuro, nearest ALS specialist 7 hours away, but they can test pulmonary...
  11. L

    Here at Mayo - Stem Cell Procedure

    Hoping you see improvements! Thank you for doing this for all of us. Keep us informed as to how it goes. God bless you. Linda
  12. L

    Our lovely Cricket

    What a tragic loss for those who loved her. My thoughts and prayers are with them. Linda
  13. L

    Doesn't it just figure

    I hear you! I've been looking into pressure-relief cushions for my lift chair and wheelchair. My behind doesn't look smaller, but feels a lot less padded. As for my belly, I keep telling everyone that everything is sinking to that level, lol. (Might that be true?) Linda
  14. L

    what does off topic mean?

    Sorry, but I don't heed "warnings" of "staying on topic" on an "Off Topic " thread, as David suggested. No offence to anyone, but our illnesses are serious enough; can everyone lighten up already?...?.. Not to mention try to be more understanding and considerate...... Linda
  15. L

    I want my father to be at my wedding. :(

    Hi. Sorry to hear of your dad's diagnosis. I was just diagnosed in August, but have had symptoms and limited mobility since 2010. My problems started in my legs. It's really tough to predict progression, but my neuro also said progression is fairly constant, although ability to do things...
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