limegreenphysicist

Hope you feel better! I noticed you are in Auburn. My husband and I live in Valley.

I read that you were actually originally misdiagnosed with ALS and doing much better now after therapy for Lyme. Would you happen to remember what type of Lyme disease screening/verification was used by your doctor and possibly what lab they used to run the test? Also, I am curious, did you go on doxycycline or rocephin (ceftriaxone), and for how long? Additionally, would it be possible to PM me the doc's info, as I am getting some resistance with my mom's current set of doc's- having trouble even getting them to run basic lab tests or try out of the box drug therapies- such as doxorubinol, namenda, or celebrex- that have been suggested as having potential therapeutic benefit in ALS. She is scheduled to see Dr. Glass at Emory in the next month here (he's the one doing the experimental stem cell trial).

I know this is a lot to ask as a stranger, but as a fellow medical professional in training I am just reaching out in the hopes that you can help me out.

Hi, LGP. I am contacting you in the hopes that you can point me in the right direction here, but first some background. I am currently a third year medical student in GA and my mom has been recently diagnosed with Progressive Bulbar Palsy/ALS. After plowing through at least forty research articles on the subject, I immediately started her on a supportive supplement regimen with little, if any, benefit.

Thing is, I have been reading a good bit of information about misdiagnosis of PBP/ALS when a patient in fact has Lyme. Additionally, I have read about how unreliable the newly designed two tier lyme testing standards are that the CDC has put into place (in which they actually removed about 5 serotype markers for Lyme). From what I understand, if the test is positive then you can be >90 percent certain that a pt has lyme, but if the test is negative then it's <45 percent accurate (better off flipping a coin here).

I live in Auburn and was diagnosed with Lyme in Feb due to a positive Western Blot. Saw a doctor in Mobile got better but I'm getting sick again. I'm looking for a new doctor. May I ask who your doctor is? You can pm me. I'm looking at going to UAB but I am also thinking about going up north because so many doctors here don't know anything about Lyme. I hope you are feeling better.

Hi...im a relatively new person here...and im only 18 and needed some advice...can we talk?

hi there . . Was wondering if i could pm you . . Really need some advice . No worries if not .thanks . . Alex

Hey Kelly!
Haven't heard from you in a while and was wondering how you were doing. Keep us posted!!!
Take care,
Love and hugs,
Linda

just seeing how your doing i hope all is well and your ok godbless

Hey Kelly,
How are you doing today, after recovering a day from your treatment?? Bucky went to the doctor this week, and we did get some good news. He thinks Bucky's symptoms are plateauing, which puts us back to the possibility of "toxic/chemical exposure" from his tours in Iraq. We have our first appt at the VA on Monday. There's some special clinic in DC "The Clinic for Difficult to Diagnose War Related
Illnesses & Injuries"...yikes
Peace!

Hi,
Thanks for your Wise words of wisdom! Sometimes, just for a moment, I feel like I can get sucked in. LOL!

Hey just wanted to say thank you for your input. I am curious as to what you have by the way and how it first started affecting you. And not to be out of line but you are a very beautiful woman, and i read that your bf left you after you got sick thats bs, guess he doesn't know what hes missingout on huh. Anyways take care of yourself. mike

You go girl! Glad to see you having a good day! Carpe Diem!! (did you ever see that movie..Dead Poet's Society??!)

I am praying u see this before u log off, I just dont think I can handle another night like last night.

Hi, thank u so much for offering to talk to me, oh do I need someone to help me sort this out, I'm in a awefull place rite now, and I cant see my way out, I cant pm anyone for some reason so I posted here. Please let me know how we can talk, I'm sick over this, I truly am

My day is fine thank you!