Recent content by Lily1967

  1. L

    Really confused-need help

    Hi Gem, I am so sorry that someone you love has been diagnosed with this. One of of our closest friends is the founder of ALS foundation in Qld so I knew about it. He formed it to raise awareness of this horrible disease as his mother died from it. What I never knew, however, is how many...
  2. L

    Really confused-need help

    Dear Tillie, Thank you so much for your reply and so sorry to hear about your Chris, my heart goes out to you and your family. What you said has helped me and it makes sense what you said about 3-5 years, my neurologist said it maybe some years before he can put a name to it, if ever...
  3. L

    Really confused-need help

    Hi Janelle, I tried to look up Mills disease but like everything else its hard to find exactly what it is and the prognosis. I hope you have the lesser of the two evils, hopefully like your doctor said you may be one of the unexplained. I was told that too, you have some sort of upper motor...
  4. L

    Really confused-need help

    Hi Green Queen, I think I replied to your message to somebody else! So anyway, thank you for getting back to me. I don't think its a matter of moving things along, my neurologist just says its a matter of keeping an eye on it, see what happens....what shows or doesn't show! I am just confused...
  5. L

    Really confused-need help

    Thank you Nikki, I am in Melbourne. I know its not long to wait but can't find any answers, no direct ones anyway. I feel for you, keep in touch and let me know how you go. In a hurry at the moment but will get back to you. Stay strong.
  6. L

    Really confused-need help

    Thank you Nikki, I looked everywhere to find the answer but nothing was straight forward. I am so sorry you and so many members of your family have been/are affected by this awful disease. I hope you are well considering the circumstances.
  7. L

    Really confused-need help

    Hi everyone, I am new here and am really sorry that you need to be on this site as it means you have this horrible illness and my heart goes out to you all. I have been sick now for nearly 2 years, firstly suspected fibromyalgia, then MS. MS is a possibility but I don't show any lesions so the...
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