Recent content by lifeisprecious

  1. L

    Thank you, Mariam. I am sorry it has taken me so long to write back. It has been a tough few...

    Thank you, Mariam. I am sorry it has taken me so long to write back. It has been a tough few months. We have been spared the challenge of frontal lobe effect- he is still very much himself mentally although not physically. He fell about 3 months ago and has had a cascading of complications since...
  2. L

    Mariam, we are in similar positions. My Dad is 73 and was diagnosed in August with bulbar. Let...

    Mariam, we are in similar positions. My Dad is 73 and was diagnosed in August with bulbar. Let me know if you have questions or want to bounce anything off me, and I will do the same with your permission.
  3. L

    Seeing ALS Doctor 1st time After Diagnosis

    Thanks Barbie. Apparently, the clinic was not too emphatic in recommending it. And I am not sure when it's appropriate. I mean, he has lost a few pounds and coughs while eating. But not too much impact yet in either area. Do you (or anyone else) have an idea about when pegs become a necessity...
  4. L

    Seeing ALS Doctor 1st time After Diagnosis

    Thanks to everyone's response. We asked the questions suggested. Apparently, no signs of ALS anywhere but the throat still. We hope it stays that way for as long as possible. It's funny how resilient people are. When my Dad first start slurring, we thought losing his voice might be the end of...
  5. L

    Seeing ALS Doctor 1st time After Diagnosis

    Thank you. Tomorrow is the appointment. I will let you know how it goes.
  6. L

    Seeing ALS Doctor 1st time After Diagnosis

    Thank you, Brian. This PEG issue is a very sensitive one, because I fear my Father will not act until he is compelled to do so. The fact he has not seen signs of the disease in other parts of his body in the 10 months since he started slurring has created, I fear, the idea that preparing for...
  7. L

    Seeing ALS Doctor 1st time After Diagnosis

    Thanks for the response. We have one with a multi-disciplinary clinic, and another with a neurologist who specializes in ALS. The neurologist I believe is going to perform another round of EMG testing, and the clinic will give us time with dieticians, psychologists, respiratory and physical...
  8. L

    Seeing ALS Doctor 1st time After Diagnosis

    Hello, friends. My 73 year old Dad was diagnosed with bulbar ALS in July. He's been slurring since December. His speech has gotten bad, but no signs anywhere else. He is seeing the ALS doctor for the first time since his diagnosis next week. What questions do you recommend we ask or services...
  9. L

    Seeing ALS doctor

    Thanks to both of you. I will repost. Also, as far as the PEG, I have heard that it is good to get one before its necessary, but timing is so tough. Right now, beyond speech and some swallowing, my Dad seems fine. It will be very tough getting him to take that step I fear until the disease...
  10. L

    Seeing ALS doctor

    Hello, friends. My 73 year old Dad was diagnosed with bulbar ALS in June. He's been slurring since December. His speech has gotten bad, but no signs anywhere else. He is seeing the ALS doctor for the first time since his diagnosis next week. What questions do you recommend we ask or services...
  11. L

    all things are difficult before they are easy

    Good day, everyone! My father, 73 and living in South Florida, was diagnosed last month with ALS. He started slurring speech last December. He can still be understood, but it has slightly worsened. He has not experienced symptoms anywhere else, nor has his EMG indicated a spread. It is my...
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