Thank you, Mariam. I am sorry it has taken me so long to write back. It has been a tough few months. We have been spared the challenge of frontal lobe effect- he is still very much himself mentally although not physically. He fell about 3 months ago and has had a cascading of complications since then, mostly involving his breathing, phlegm buildup and the increasing fatigue as his oxygen lessens. I actually foolishly thought we could escape the physical complications for a while, but this disease is relentless. Luckily, his spirits are good- he is at peace with his life- and I guess that a rapid decline is better than a scenario where he lingers helpless a long time. That is a big blessing with bulbar, I think- the situation where one is incapacitated and para
lyzed for a long time seems to be rare with bulbar. And you? How have the five months since you wrote?
lyzed for a long time seems to be rare with bulbar. And you? How have the five months since you wrote?