Recent content by Libbylu

  1. L

    FTD With ALS Advice

    Thank you Lixen...my PALS not on any antidepressants. I do believe it is either FTD or a mania associated with the fact that he has been on a ventilator for two years. So frustrating to witness the man you fell in love with slowly fade away. Ours is a very unconventional situation in that I...
  2. L

    FTD With ALS Advice

    Tillie...thanks. Have not totally moved out...just packed some bags. Will be seeing an attorney later this week. Even though I have done as he wished and moved out, rest assured he has hired enough people to care for him. Although, I am sure he will be telling people I bailed. Just wanted to...
  3. L

    FTD With ALS Advice

    Tillie, this is Libby Lu. It has been awhile since I have visited the Forum. I know I have questioned the FTD forum before, although I went into ALS Forums and Not Sure if it is FTD. I noticed that the blog was closed, however, there was a mrvaughan that spelled out exactly what I am going...
  4. L

    FTD With ALS Advice

    Dear Travelbugg, thank you for sharing your similar horror story. I am in a bit of a bind, in that my Husband is also my Financial Advisor. I have talked to an Elder Care Attorney, and he has explained that my Husband would be dragged in to court and potentially lose his job and medical...
  5. L

    FTD With ALS Advice

    Thank you Tillie for understanding what is happening here...and offering advice.
  6. L

    FTD With ALS Advice

    Tillie, agree with you about triggering of behaviors. I am going to start attracting bees with honey, and not vinegar. I always seem mad and upset. If I start taking care of me, maybe joy will follow. I have lost 10 pounds recently over what is happening to my husband and activities within my...
  7. L

    FTD With ALS Advice

    Tillie... I do not seem to be receiving much support from my Husband's ALS Clinic...about behavior or driving!
  8. L

    FTD With ALS Advice

    Thank you Tillie... Have a plan in place for talking with an attorney about financial power of attorney. I am even contemplating visit to State Police about Personal Assistant preying on my sick Husband. Can't believe I am here, but I am! This is nuts!
  9. L

    FTD With ALS Advice

    Hello Tillie...he meant he would choose his Personal Assistant as his Caregiver over me, his Wife. We had a wonderful Personal Assistant that we hired together in January of this year. When I helped move our daughter to a new college and apartment in August, he fired her and brought this new...
  10. L

    FTD With ALS Advice

    And, Husband refuses a Nurse...when is it time for a Visiting Nurse?
  11. L

    FTD With ALS Advice

    What is the difference between a Caregiver and a Personal Assistant?
  12. L

    FTD With ALS Advice

    Hi all... My Husband told me today that he is choosing his Personal Assistant over me, his Wife. I do not know what to do or say. I am about to give up on this craziness...
  13. L

    FTD With ALS Advice

    Max and Nikki...praying for you both tonight.
  14. L

    FTD With ALS Advice

    Thank you Both for your advice. I contacted the Social Worker today at the ALS Clinic where my husband is seen. And, I told her EVERYTHING that has been going on over the last couple of months, including driving issue. I am hoping something will be done...don't know how much more of this I...
  15. L

    FTD With ALS Advice

    Thank you, Tillie, for FTDForum information. I have read the previous two posts regarding licenses being taken away from PALS...My husband is on a ventilator 23 hours out of the day, has head drop, has right foot drop. I am waiting for the doctor to mention the possibility. My Husband is...
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