Recent content by Libbyc

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    Like new pressure-relieving bed (in Oregon)

    Thanks, all, for your suggestions! Unfortunately, my ALSA chapter's loaner closet doesn't accept beds--just don't have the room. I've had no bites on Craigslist either. I'll try facebook and freecycle!
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    Like new pressure-relieving bed (in Oregon)

    Hi! We've been trying to find someone to donate our Stratus Turn mattress and adjustable hospital bed frame to, but not having much luck. Only used 2 months. We're in Portland. Please contact me if you have any interest!
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    Sliding Sheets? How to Use, How to Move my PAL with One Person

    We struggle with the same issue, Katalin! No issue why, exactly. It is incredibly difficult, and dangerous, for one person to be hoist a PAL in bed. We also use a chuck underneath. We have met with PT and OT about this, but no one has found a sustainable solution. We raise our PAL's knees to...
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    legal signature

    Hi everybody! Hope you all had a great weekend. What do you PALS do for signing documents? My buddy has almost lost all ability to sign, but still has full cognitive ability to do so. I realize that eventually we will use POA, but is there something we can do in the interim? I've looked...
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    Biking again!

    My dear friend has been in ICU for roughly two months as we negotiate all the issues with finding care and housing for him, but we are almost there. He has been understandably depressed, but hesitant to try new things to help improve his mood. He has lost the ability to use his hands and lower...
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    VA coverage for 24 hour care?

    Thanks for all the feedback! I'm learning quickly that every step in the process is really more like 3 or 4, but we're still making headway. My friend already has the HUD-VASH voucher, but as I'm learning, that may not have been the harder part. HUD-VASH approved housing is pretty scarce...
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    VA coverage for 24 hour care?

    Just an update, since I want to stay involved in this community. My friend and I have had some frank discussions, and we determined for many reasons my house is not suitable for his care. His goal is to move into a private apartment on a HUD voucher, and have skilled nursing care a few hours a...
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    VA coverage for 24 hour care?

    Hi, everyone. This is such a wonderful community you all have built. I have learned so much already and am so grateful for this resource. My friend has very recently been diagnosed with ALS, bulbar onset. Diagnosis was only about 3 weeks ago, but things have been progressing rapidly as his...