Recent content by lhart

  1. L

    New, and now depressed, and scared!

    Hi David, Sorry to hear whats happening to you, but glad you found us. Lots of information and people to talk to on this forum. I am 38, have had ALS for five years. It sounds like you're in good hands. Feel free to ask us questions, as we can all relate. Try to keep your sprits up, a strong...
  2. L

    Happy Birthday Al!

    Happy Birthday Al! Cheers! Les
  3. L

    choking...please help

    My 2 bits worth, I've had a feeding tube for seven months now, and, as freaked out I was about getting it..it's the best thing I did. You learn how to eat (through trial and error usually) without choking by adjusting your diet and modifying the food like everyone said. But its hard to get...
  4. L

    Thumb operation

    hey Al, Its funny the same procedure was proposed to me, but that was before I was diagnosed with ALS. My ALS symptoms started with my right thumb and they thought I merely had nerve damage in my hand. I was sent to see a plastic surgeon and he explained that they could take the tendon that...
  5. L

    retired

    Hi Elaine, This retirement thing has its good points and bad points. I, like you, left work in the peak of my working years (I'm 39). I've been there 16 years and love it. The people I work with are my friends, I met my wife there. They were so good to me and would have helped me in any way if...
  6. L

    Call me grandpa Al

    congratulations Al, Thats great news! Les
  7. L

    Saliva ang phlegm

    One more thing, the riluzol does cause numbness. if you've ever had a pill stick in your mouth or throat you'll know what i mean. it almost feels like novacane. i take it now through my feeding tube just for that reasOn. les
  8. L

    Saliva ang phlegm

    Hey al, i've been on tHe bi-pap for six months now and have tried everything to lessen tHe desert mouth. nothing works completely, however you do get used to it. tHe first thing i do every morning is "swish and spit" water for about five minutes to get tHe juices flowing again, tHen spend tHe...
  9. L

    NEWS FROM CAROL

    Our thOughts are with yOu and yOur family carol, stay as strong as we know yOu are, and please keep in tOuch. les and holly
  10. L

    Recent diagnosis

    Hi, talking about symtoms and personal feelings is what this forum is for. my speech is quite bad now and eating is difficult. the feeding tube was the the best thing i did. i put it off too long and started to lose weight. eating was becoming stressful, with the feeding tube, i don't worry...
  11. L

    Recent diagnosis

    My two bits, My doctor told Me to do everything i want now and if next year i'M still able...do it again. its been good advice for Me. reMeMber, no Matter what he has to deal with, he's still your uncle and soMe siMple words froM you could change his whole day. les
  12. L

    Introductions requested

    Hi patsy, i look forward to talking to you more. we sHare a lot of tHe same problems and are tHe same age. welcome to tHe forum. les
  13. L

    New to Forum

    My syMptoMs were Much the saMe as your Mothers. it started in My right hand. My g.p. sent Me to a neurologist who ran tests, sent Me for x-rays, Mri's etc. this went on for a year. at one point he even referred Me to a plastic surgeon thinking they would reroute tendons in My hand. then i heard...
  14. L

    Not Qualified

    Hello all, its funny, if i had to predict the people that would be involved in my life at this stage, i would have had it pegged all wrong. i have life long friends that have dropped off the radar completely and simple co-workers that have become very special to me. there are some who can't...
  15. L

    NEWS UPDATE ON HENRY

    Carol & henry, we're here for you, when you need us. les & holly
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