Recent content by letty

Burt was seen at Pa. Hospital by Leo McCluskey

Thank you all for your prayers and kind thoughts.

My dear husband, Burt, died exactly 2 weeks ago from the ravages of bulbar ALS. He got aspiration pneumonia, and nothing could help him, with his increasing weakness from progressive ALS. He was so brave, and he never complained. We did get to honor his wish to die at home. I miss him terribly...

Colisa, Have you thought about having a beef and beer" fundraiser? Maybe your local ALSA office could get you started with that or maybe advertize through your kids schools, etc.. You can raise a lot of money that way. Maybe you can get an interview by your local newspaper/ trade journal to get...

Thank you! :razz:Thank you for being candid and supportive. Letty

Hi All, My husband was DXed with bulbar onset 2/08. I am on a combo of antidepressants to be able to supervise his medical care, foods, medications, etc.. I do manage to get out sometimes, but how do caretakers manage to deal with the grief and sadness themselves. Thank sso much. Letty

PDaddy, My hubby's Dr. told him to use a spoon to clean his mouth out after eating since his tongue can't do it anymore. It seems to be working. Letty

Hi Friends, While on vacation in Ca., my sister-in-law, who has always had TMJ problems, made an appt. with her TMJ dentist to see my husband who has PBP. He told him that he is treating another man with serious Parkinson's symptoms and has helped him by evening out his bite so that cranial...

medication? Lorie, You're going through such a rough time- are you taking an anti-depressant? The right one can help you cope. Letty

so sorry! Lorie, I'm so sorry that this has happened. I'm glad that you're laying down the law for that mean nurse. Maybe she should consider a career change?:) Letty

Thanks and my thoughts Thanks again Anneinma and everyone else for your kinf words. I was thinking that in other countries, it would be taken for granted that family would be nearby and of course they would gather around to help family members in crisis. here, everyone is scattered and is...

Thanks! Thank you so much for your posts; your kindnesses have brought me relief. One of my sons (the one 2 hrs. away) will try to come back to stay a couple of days a week and work from here. God Bless you all. Letty:)

And I'm so grateful to have found this site! My husband has been diagnosed with the bulbar form after having progressive symptoms for 9 months. I must say I'm in total grief and sadness about this but am trying to remain strong. We have 3 kids in their mid-late 20's, one is married and lives...