Recent content by lerg62

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    James "Buddy" Garrigan

    Thank you to all, you are such a wonderful compassionate group, you will always be in my prayers
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    If you know of someone who needs one in the Orlando/Oviedo Florida area and someone can pick it...

    If you know of someone who needs one in the Orlando/Oviedo Florida area and someone can pick it up it's yours You can e-mail me at [email protected] and we can work out details.
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    Hi Stu: My sister in law was going to donate buddy's wheel chair, don't know if she has yet but...

    Hi Stu: My sister in law was going to donate buddy's wheel chair, don't know if she has yet but I see you are looking for one. They are near Orlando Florida. Laurie
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    James "Buddy" Garrigan

    I just wanted to let everyone know that my brother Buddy passed away on March 16th at the age of 49. For as much as he struggled and suffered with this disease he passed away very peacefully with all of us by his side. Buddy’s struggle with ALS, also showed what kind of man he was when faced...
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    Swelling?

    Buddy's Sister I see my awesome sister in-law posted about Buddy's swelling. I was just down visiting Buddy and the Lasik doesn’t seemed to help at all, the swelling in his legs is unbelievable it goes up his whole leg and they are hard as tree trunks, i mean so stiff, i can't imagine it's...
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    Sorry must post..

    This site is a life line for me. I don’t post very much but read everyday and I have not come across one single person who is not compassionate of everyone ALS Dx or no Dx. I do not have ALS, my brother does and the people here are my heroes. I can not begin to tell you what I have learned...
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    Causes of ALS

    My brother paved roads for years and I always wonder if inhaling all the chemicals in the tar might have done something. Then again we lost a sister to Lupus (another autoimmune disease) when she was 38 so who knows......
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    Anyone have any experience with getting grants for handicap adaptation?

    Al is so right, Stu @ ALS Guardian angels has been wonderful and he put us in touch with a wonderful ALS Nurse called Marybeth who has been a Godsend.
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    columbia medical center ,nyc

    My brother went to Columbia twice, he saw Dr. Mitsumoto. The first time (Aug of 06) they said they didn’t think he had ALS said they wanted him to come back in 6 months (he went back May of 07) when he went back they were pretty sure it was ALS. It had already been diagnosed by 3 different...
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    sleeping trouble

    my brother mostly sleeps for short periods of time (2 hours) he says he can't get comfortable on his side but if he lays on his back he says he can't breath, even with the Bipap. Also he feels the need to get up and go to the bathroom quite often. So I don't know if this is what most people...
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    BiPap

    Thanks to everyone for your answers, this is such a wonderful forum I don't know what I would do without it. I don't post much but read everyday and it has helped me so much. Al, I can't wait to tell my brother that the "poop" he is smelling is his own breath coming back at him.... that is...
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    BiPap

    My brother Buddy has started on the BiPap machine and he is not liking it,(only two days i told him he had to give it more of a chance) he is wearing it all night but says half way through the night it starts to smell really bad (like poop was his words and he has such a way with words) I was...
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    Feeding Tube

    Hi Peg: Everything I have read says it stands for Forced Vital Capacity. It just helped us and Buddy realize that it was time to start using the Bipap which we hope will make him more comfortable. Brendapals is correct Wright can probably answer more about it. God Bless Lerg
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    Feeding Tube

    Thank you Al. Buddy just got back from the doc and his FVC is at 50% (was 63% in June). They were not even going to test it, the doc was just going to go by his numbers from June... his wife had to tell him that we thought his breathing was worse so they went a head and tested it so now they...
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    Feeding Tube

    Happy Monday. I just have a question about feeing tubes and FVC. My brother Buddy's FVC was at 63% back in May, he has another appointment with the Pulmonologist today to see how he is doing (I was down in FL visiting him last week and I saw a big difference in his breathing from when I saw...
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