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  • Hi I have seen your post as I have been experience similar experiences. Did you ever get to the bottom of what it was
    Hi Lennon,

    I saw some of your posts and wanted to know if you're okay. I'm hoping your symptoms have not progressed and you're doing better. Thoughts are with you.
    Did your neuro comment on your muscles shaking or has it gone away?

    I know it’s hard but don’t freak out yet. I have seen many tongue twitchers with BFS. I’m not sure about your hand strength numbers, are they considered normal?
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    Lennon
    He said all is normal but tongue fasiculation and memory.
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    Waker
    If you’re shaking for a pathological reason I don’t think working out will change a thing but exercise is always good I guess! You should probably mention it to your neurologist. I know you’re depressed right now and believe me I am too but I have read many stories of people thinking they had bulbar onset and I don’t think I have seen one case where they were right. You should not lose hope until you do the EMG.
    L
    Lennon
    Thanks for the positivity. Hopefully both of us survive.
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