Recent content by LeeAnn Garvin

I recently had the feeding tubed placed, I realize now, it was a big mistake. In hindsight, I should have never gotten the feeding tube. I was in the doorway to death by starvation. 3 days without water and I would have been on my way. They would have given me morphine to keep me comfortable...

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In the form of butter, you get a "body high" not as much effect mentally, but some. I like the mental high, I can get from smoking it but the physical high takes care of all my symptoms. I should mention, it is legal here and I have a medical card. Mostly so I can travel to California and...

I have used it everyday since being diagnosed. It calms the nerves and stops the twitching. I am able to sleep 6 hrs at night, without it I sleep an average of 3 hrs. It helps me mentally as well, often helping me see things in a new way. The mind can be very entertaining! I did not realize HOW...

Oct 8, 2013 confirmed ALS Bulbar, the fast moving kind..... Preparing? I tease jack about who he should marry! I keep it real, I say what I need to say. Things like what I want my headstone to say. Something I had never considered. I believe reminding them often keeps them out of denial and...

I have been on DP since Oct 2013 when I was diagnosed. Yes it is bulbar as it started with my speech in Feb 2013. I do not have a feeding tube but I see that is around the corner. I have been in touch with Deanna, her father (the Dr who came up with the protocol) and her sister. They manage the...

They are putting together a liquid package of DP. Call them to see if it's ready yet. It is suppose to be ready when I order again in two weeks.