Recent content by LaurentCH

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    question to wright: a scary study on fasciculations and cramps developping to ALS

    two important points about the four people from the study blizna: their symptoms progressed over time. and there is not stated that they had anxiety before it started. remember that most of people suffering from BFS had and have anxiety. daily magnesium intake for a longer period seem to work in...
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    question to wright: a scary study on fasciculations and cramps developping to ALS

    that is scary to me as it opposes everything i have read and heard from books, als and/or emg-specialists. the als clinic also told me, an emg detects ALS it even before the fasciculation start.
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    question to wright: a scary study on fasciculations and cramps developping to ALS

    did all the four guys really have CLEAN emg?
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    question to wright: a scary study on fasciculations and cramps developping to ALS

    blizna, the authors don't have a single case with fasciculations only developping to ALS. they just want to cover their arses. the word "OR" is pure speculation. the really troubling thing to me are the clean EMG, except for fasciculations.
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    question to wright: a scary study on fasciculations and cramps developping to ALS

    i think we all know that ALS can start with fasciculations AND cramps. my neuro at the als clinic has written on the exam paper, that in the absence of cramps and the EMG just showing a few fasciculations but nothing else my issue would be benign. this side of the story is not so shocking to me...
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    question to wright: a scary study on fasciculations and cramps developping to ALS

    thanks everyone for taking time for this. my neuro, the top als specialist of switzerland, did not want to comment this study and just told me, i should not have read it...this also shows they really know nothing about fasciculations. wright: these 4 pals are not 4 out of millions but out of...
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    question to wright: a scary study on fasciculations and cramps developping to ALS

    dear wright: there are four cases with BFS/BFCS with clean EMG developping ALS later on. Any comments on this would be appreciated: SpringerLink - Journal of Neurology, Online First? best wishes
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    news from germany

    i am not german but just wanted to share this: Blocking inflammation in the brain: New therapeutic target for the treatment of amyotrophic lateral sclerosis. Scientists at the Max Planck Institute for Infection Biology in Berlin have now identified a signalling molecule that may be implicated...
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    Radon in my house

    thanks john, i have brought it to the no. 1 specialists on mnd in germany and switzerland. they both say "ver interesting indeed" but don't seem to be interested in further research. the swiss guys no. 1 suspected vilain are cyanobacteria.
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    New to forum, John McCarty, PhD

    thanks doc, science really seems do know nothing at all. barry is right, there are thousands of twitchers out there, scared like hell, that their symptoms is due to ALS. Words like these are very easily misunderstood.
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    New to forum, John McCarty, PhD

    "reports from many sALS patients of very early mild symptoms that later are consistent with the ALS diagnosis (ex.: fasciculations or weak muscle group decades prior)." . doc, i was diagnosed with bfs, fasciculations all over, some days worse than others. i have been told this is not ALS, are...
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    Higher Rates of ALS among radiologists

    This seems to support my opinion about a relation to radioactivity as I have reported earlier: http://www.nv-med.com/rm/pdf/2003_21_3/108.pdf (see page 2)
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    Radon in my house

    Elevated Rates of ALS Found in Radiologists: http://www.nv-med.com/rm/pdf/2003_21_3/108.pdf see page 2, the rate is quite elevated!
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    Scared again - Please help

    Dear all Sorry for bothering you again. it has been 13 months since i began to twitch allover. the fasciculations were here and there. two visits in the swiss als-clinic in october 2008 and february 2009 showed clean emg and clinical, diagnosed: BFS. in the last weeks i seemed to get some relief...
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    not good

    dear bart, i am very sorry about your condition! what is strange is, that i always thought ALS to be a diagnosis of exclution, means they first have to do all the tests for lyme, d-defieceny, mercury poisening and so on before they can even speak about ALS. BTW i also have this shoulder problem...
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