Recent content by Laurencarroll

This calms my nerves. My mom is having hers inserted this Thursday. Thank you.

Yes. She wants the tube and wants to fight this disease for as long as she can with exception to not wanting invasive ventilation. She is on BiPap basically 24/7 with exceptions to food and water but she can only tolerate the mask off for 2-3 minutes at a time on a “good day”. I am pretty...

Hi there. My mom is currently in the later stages of her battle with limb onset ALS and she is currently losing her voice and secretions and phlegm are becoming an issue for her. She is currently on a puréed diet but we think she might have aspirated a bit of her breakfast this morning so we are...

Thank you everyone for your replies. It is wonderful to have such a resource available. It is also comforting to know that her symptoms are in fact not entirely uncommon. This entire process is so frustrating when every time we would try to get answers regarding her blue/black feet we would just...

Hi everyone. First and foremost, thank you for your help. I have been registered for these forums for a few months but haven’t posted. My mom is four and a half years into her diagnosis of ALS, limb onset and we are at the point that the only parts of her body that she has true control over is...