Recent content by Laraliu

Hi All, Checking in from the West Coast. We finally got some rain and are looking forward to more. it's great to see the fields and valleys in variying shades of green again. Disease seems to be progressing, I'm now fully reliant on my electric wheelchair and having gripping trouble with my...

Here. Raining tons in CA wine county so I'm grateful for that. Started on the house wheelchair adaptions in our master bed and bath, so that's all good. Hanging on this wild ride as my condition seems to be changing weekly. Laraliu

Hi All, Spent a week recovering from having parents visiting for Thanksgiving. There were some fun times, but overall it was not the family get together I was hoping for. Neither parent mentioned my ALS diagnosis, my compelete reliance on a power wheelchair and my husband or asked if we...

Checking in after a busy two weeks. Hubby took me on his business trip to LV (where I grew up) and I banked some serious family time and visited with two of my oldest friends. Then a week down in Orange County to have the wheelchair van modified with hand driving controls and EZ lock docking...

Here, but it's all starting to feel like a wonky dream. Then I wake up and realize its all too true. As if having ALS wasn't enough to make you feel alienated, this presidential election seams determined to divide us all. Doing the best to hang in there. Laraliu

Hi All, Its been a tough week, but Im still here. Lara

Slick, Your an awesome friend. I've found that since my diagnosis that I'm often forgetfull and disorganized. Since this is a complete turnaround from my pre-diagnosis self I was concerned. I've now spent 9 months in counseling, and realize that my forgetfulness and disorganization came from...

Hello All, Thank you all so much for your contributions. It's comforting but saddening to know there are others out there experiencing the same frustrations of ALS. I think Ttipete said it best, "I will not let ALS take away my will, even as it ravages my body " This is going to be a very...

Hi All, First time posting, diagnosed last summer. Transitioned to a full time wheelchair user around Feburary. That transition was primarily due to the fact that I was falling, too often and too painfully to continue walking, even with a walker. Now, using chair for everything but bathroom...

I participated in the two week open trial portion. Following the first dose I had mild dizziness and fatigue which continued throughout. Towards the second week I started having severe acid indigestion, despite taking pantaprozale. Additionally and more problematic for me were the return of...

btw- "trimesu" is my hubby and I's code name for the drug trial, Tirasemtiv.

Hi All, I'm new to the forum, diagnosed Spring 2015, after a year of tests, doctors and a diagnosis I hadn't even imagined. Nine months later with progression my doctors call slow and I call alarming, here I am. I am a 49 year old married woman without children. If your interested in the tiny...

My first symptom was drop foot so I had the joy of wearing an AFO for about a year prior to landing in my new normal, a wheelchair. I spent that year trying to find shoes which accommodated a bulky AFO then a lighter weight Ossur AFO Light which was much easier to fit into shoes. Still, I ended...