I am living in Boulder City, just up the road from you. My husband has had PLS for 34 years - if I can help you at all I would be glad to. It's pretty overwhelming but there is help out there. Have you contacted ALS of Nevada (777 0500)? They have an office here in Vegas and have services & support as do the MDA. They might have grants too. If your husband is a veteran he may qualify for service connection benefits which will really change your financial situation and get you and him the help you need. There is a new neurologist in Vegas called Dr Jonathan McKinnon who runs an ALS clinic (505 4231). He is from the Mayo Clinic and is an excellent doctor. He ran some tests & discovered husbands PLS has now evolved in to ALS, making him eligible for VA benefits. Do let me know if you would like to get together (293 7479). Good Luck!