Recent content by ladyannabel

  1. L

    Having issues and testing

    I definitely will! It's worth it to end ALS!
  2. L

    Having issues and testing

    I have a diagnosis! It's vitamin B12 deficiency! I just got a call this morning about my labs showing low B12. Still working out the details, but I am so happy I don't have to worry about ALS any more!
  3. L

    Tremor in als?

    They can be signs of upper motor neuron issues, I think, but ALS also involves lower motor neuron pathology and so the picture looks different than UMN alone. If tremor is the only issue, probably nothing to worry about.
  4. L

    Having issues and testing

    Very true, notme. Thank you so very much! I was fishing for confirmation of these things, particularly the intermittence of swallowing. I just wanted to be sure that no PALS jumped up and said "I do" to any of these things. I have thought about the percentage of MSers whose mri studies do in...
  5. L

    Having issues and testing

    Well, I am thinking he must have some idea of why he ordered the EMG. Docs don't just order unnecessary tests, so he must be thinking something. Wouldn't he? He first thought MS or spinal cord lesions because my symptoms were highly suggestive of CNS pathology and things that would have shown on...
  6. L

    Having issues and testing

    I think I'll call and talk to his nurse about my worries closer to the date of the test. I'll ask what his specific suspicions are and whether I can take pain meds before EMG.
  7. L

    Having issues and testing

    It is all in my medical records. I used to be a transcriptionist and since then I always read my records. Plus he told me that my reflexes were very brisk and he was very concerned about that. (These were records from before the MRI results, so his "guess" at that time was MS or brain tumor. But...
  8. L

    Worried about EMG

    Thank you everyone. I will try not to worry about it. (and I have never had a bikini wax, Elaine, so I don't know what that's like) ;)
  9. L

    Having issues and testing

    Oh, I forgot... I had a normal modified barium swallow! Would this give me hope that it is not ALS? Has anyone with ALS (and dysphagia) had a normal swallow study? Thanks all!
  10. L

    Having issues and testing

    Hi, My symptoms started about 8 months ago with dysphagia that comes and goes as well as feelings of heat in my legs. I now have weakness in all four limbs bilaterally (worse on right), widespread fasciculations, hyperreflexia and spasticity on clinical exam. There is a "spastic catch" in both...
  11. L

    Worried about EMG

    Hi, This is my first post. I am scheduled to have an EMG and nerve conduction studies Dec 13. I am really scared as I heard these tests were quite painful. Can anyone set my mind at ease about the procedure? I am also, of course, afraid of the outcome, but there is nothing anyone on this...
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