Recent content by LabMom

  1. L

    Nice clothing for women with ALS?

    Now that it is cold and wet I need more than just a shawl but a coat isn't an option. We found a nice windbreaker poncho that folds up intoit's own pocket when I'm not wearing it. I have used it several times and it really helped kep me warm over a shawl or a sweater. Best of all it keeps me and...
  2. L

    Just starting with Hoyer lift

    We have been using a manual Hoyer for all transfers for sevral months now. We are looking at the possibility of upgrading to an electric lift. I do not like to keep the sling under me in the wheelchir or in bed because of how it feels. I can tolerate it if I know won't be hours. Maybe its just...
  3. L

    Nice clothing for women with ALS?

    It was sad for me to go from professional to comfort. Just getting dressed leaves me exhausted now so we go for easy on and easy off. Now that I can't stand or move my arms pulling on pants is impossible includig undies. We are always looking for ways to streamline so it is easier for both of...
  4. L

    Nice clothing for women with ALS?

    Great discussion. I wear long knit summer dresses. They are in style right now. I wear camis with built in bras. They are easy for my husband to put on me. When I am cold I wear leggings that just slip on my legs and nice shawls that are easy to throw over my shoulders. I have been a lttle...
  5. L

    Power chair? Start the process as soon as you can.

    Glad you finally have it. I will be ordering mine soon. I sure hope it doesn't take as long.
  6. L

    I originally sent this message on May 1, but I didn't notice until today that I didn't send it...

    I originally sent this message on May 1, but I didn't notice until today that I didn't send it to you like I intended. I still don't know how to send messages to people, but now I have figured out to reply to a message. Hi Deb, Sorry for the delay in writing. I haven't been back on since I...
  7. L

    Hi Cathy, You have your priorities right. I draw on my faith and my family and my friends. I...

    Hi Cathy, You have your priorities right. I draw on my faith and my family and my friends. I know that is all that will get me through. Dee
  8. L

    Work

    I am in the same place as you except I have decided already to stop working as soon as possible. I am just waiting for the six month waiting period to kick in before I officially leave. Unfortunately for a stupid rule that nobody understands, in order for me to use the sick leave I have saved...
  9. L

    Hi Deb, Sorry for the delay in writing. I haven't been back on since I posted the last time. I...

    Hi Deb, Sorry for the delay in writing. I haven't been back on since I posted the last time. I am not taking anything for muscle cramping. I called the ALS clinic and spoke with the nurse and she did not think what I was experiencing was related to ALS. She said she had heard about sluggish...
  10. L

    Abdominal pain any one get this

    I had an extremely painful episode last night and it was the second one in the last month. After the first time, I wondered if it was what Olly said, that my stomach was somehow not able to move the food through. The first time was uncomortable but after a while, it felt better. Last night was...
  11. L

    Best trip ever?

    The best trip ever for us was a six-week trip up the Inside Passage from Bellingham to Glacier Bay. We did it in our 25 foot boat. While a lot of people do this trip on a cruise ship, seeing it all up close and at our own pace was incredible. We did it twice and know we can't do it again but we...
  12. L

    Riluzole

    So sorry to hear that. I started it about 3 weeks ago. My Neurologist started me once per day with a meal for a week, then twice a day with a meal for a week, then switched me to twice a day on an empty stomach. I haven't had any issues. He said some people have problems when they start taking it.
  13. L

    My Dear Husband Has Passed Away

    I'm so sorry for your loss. I pray peace and comfort for you and your family.
  14. L

    Transfer Board

    Thanks, Deb. I have been researching the Hoyer lifts and I also think it would be a good idea to have one available in case I go all the way down. Seems that is more likely to happen as my legs are very unreliable now. For the most part I can stand and pivot but I can't take steps. Too often...
  15. L

    Transfer Board

    I'll be interested in this topic as well. I have been trying to decide on what kind of lift I should get and when the right time is to use it. I don't feel like I am ready for that yet, but I am concerned about my husbands back, not to mention when my mom is here with me. I didn't even think...
Top