Recent content by Labinma

Thank you all for your kind condolences. Thankfully it was peaceful. Just as if he had fallen asleep watching tv on the couch. One aspect of ALS that I guess is good considering. Peace to you all. Lisa

It is with great sadness that I report that my husband Steve passed peacefully on January 9th during the night. Thank you forum. You helped during a really challenging time. xo Lisa

Anyone heard of this or explored it? Good, bad or indifferent? Thanks,

Thank you all. Responses are just so comforting. I guess what I am wondering is if no outside impacts/issues occur will his body just one day give out due to lack of food/sustenance? ie. does it just stop functioning all at once, or does it usually go down element at a time., ie, he looses his...

I researched other entries re: weight but guess not finding what I am wondering about. My husband is in his 3 1/2 year plus, and now is basically a concentration camp looking individual. I only put it that way as he says that to me that he is. He is skinny, skinny, skinny. Speech slurs, cramped...

Thank you Kristina1 also for the feedback from the camp. I will consider it next year for sure. My husband felt it too soon since we haven't even sat them down with any talks about ALS to begin with. Love that it worked for them and they seemed to gain some peace from the experience.

Also, thank you Mike, for the good, the bad and the ugly. ;)

Thank you, thank you, thank you all for your insights. God bless this forum! Take away, nicely said from Laurie (you have incredible insight and perspective on things), is that I have awareness she doesn't. That she wont remember his slurred speech and incapacity, but rather his capacity and...

Hi all..... So, I see this approaching. This time that will be sad and changing. When my husband will not be able to participate fully. He is now still driving and going to work but cant pick up anything heavy, speech is slurred, and has trouble with stairs. It truly is so hard to live in this...

makes sense, thank you.....

My previous post was about driving and "zoning out". I would love to understand more this mode the patient experiences into where your eyes almost close but not all the way, and it is not necessarily fatigue but a result of side effect of ALS? Another way put, looking half awake but are not...

Thanks all. Yes, so tuff. My girls are not riding with him basically or will not be. I know it is important to allow an individual to process this disease their own way, but lately I just don't think he knows what he thinks about it as his body continues its downward spiral. Trying to be the...

How do you tell a 52 yr old stubborn man's man with ALS he cant drive ;(. I don't believe I have any control over this, only in how I can control my actions which is to not drive with him anymore. His mode of coping has been denial, and not a lot of communication on what he is going through. I...

Hi, Breathing while sleeping are short fast breaths. No bipap. So far refusing any assistance of any kind. Very thin, can walk but only short distances, has a limp, Cant lift heavy objects. Facilations fast and furious in his chest now. Speech worsening by the week, but still understandable...

Hi all, My PALS insists on driving. He has been and continues to. Its when we go on a family trip that I actually see first hand how he is doing. I have to say there is no swerving and he is slow, constant and safe basically. However, the other day he insisted on driving my girls and a...