Recent content by Kylee91003

Not doing well at all going in for another MRI soon! How are you? Ssorry I have not been on much I am having very bad vertigo!

Yes they are going to do a muscle biospy on me. Vitamins are the only treatment for mito. I am just so tired all the time. The ivig was not good for me made things a little worse. I guess it was to hard on my body.

They still say mito. I have had 3 clean emgs. My face pain is comminmg back. What do they say you have?

My emg I have had 3 have been normal

I have mito. My breathing is ok for now but my face pain is comming back. What do they say you have? Has you ever gotten an answer?

Not feeling great had a Neuro appt today. Sorry your not feling well. Yes I have had gi problems but they seem ok now. I am having constant interl vibrations nd dizzy spells right now! Not fun I also got diagnosised with nystagmus today.

I think the cipro triggered the mito to show itself. Never had problems in my life before!

Hi I am also having very. Bad problems from a cipro reaction now diagnosised with a mitochrdrial disease.

No to good right now! How about you?

They want me to goto Georgia for the muscle biospy. My amino acid and lactati paytive (sp) ratio was all off! I am on coq10 and carnitine vitimans right now just stareted last week so we will see. The funny thingis my daughter when she was 2 was thougth to have mito as well and my aunt mom's...

Hi Rose just checking in how are you ? They think I have Mito disease and I am now on vitimanes to try and help so we will see.

Sorry I haven't gotten back to you been crazy the biopsy was not mine they read me someone else. Now they think I have mito disease and started me on vitimans the ivig was not good to me my skin has been on fire and dry for months since receiving it. How are you?

Not good just had skin biospy done on face vasulitious.problem is allergic to stroids not sure how to treat.

I would really like to talk on the phone if you would be comfortable with that. It is ok if not just having a really hard time. They had me on steroids for 4 days with no help. Something happend after my ivig my skin is tight burning and itchy and won't go away even with the steroids. Now after...

I would really like to talk on the phone with you if that would be ok? It is fine if you feel uncomfortable this way is fine I am just having a really bad time. They don't know what is worng my Ana went up after the ivig so they think it has caused some kind of autoimmiune response. Don know...