HI,
I am sorry but I wasn't on the site for awhile as our computer broke and I lost the website. I have MMN probably since about 2002, but was DX with ALS in October 2006 and then in December 2006 given a differential DX of Atypical ALS or MMN. The IVIG works and now my DX is MMN. I have been on IVIG since Jan 2007. For the first 1 and 1/2 years I got it every two weeks. We tried every 4 weeks but that was too long so for the last year and a few months I have gotten it every 3 weeks. Tomorrow is treatment day. I get it at home for about a 5 hour period. I used to fall a lot and my right hand is more atrophied but not by much. I have written lots of posts about it and my progression. I don't know if they would be helpful to you or not. Please write to me if you have questions and would like to know what I know, which is not much. Take good care, Peg
I am sorry but I wasn't on the site for awhile as our computer broke and I lost the website. I have MMN probably since about 2002, but was DX with ALS in October 2006 and then in December 2006 given a differential DX of Atypical ALS or MMN. The IVIG works and now my DX is MMN. I have been on IVIG since Jan 2007. For the first 1 and 1/2 years I got it every two weeks. We tried every 4 weeks but that was too long so for the last year and a few months I have gotten it every 3 weeks. Tomorrow is treatment day. I get it at home for about a 5 hour period. I used to fall a lot and my right hand is more atrophied but not by much. I have written lots of posts about it and my progression. I don't know if they would be helpful to you or not. Please write to me if you have questions and would like to know what I know, which is not much. Take good care, Peg