krnNdug's latest activity

I have to use stool softeners (Colace Clear), psyllium (careful if putting down a tube because you need plenty of water with it but I...

Developing multiple somewhat effective therapeutics generally requires knowing something about the disease, though for sure we don't...

Millions of people got covid vaccines and someone is diagnosed in the US every 90 minutes on average. I do not believe the clinics have...

Welcome. You are listed as a caregiver -- do you mean that your PALS had a COVID vaccine soon before diagnosis? There is no...

I use nose pillows. I didn't know that they could be used with a CPAP. My mouth stays closed and moist for the most part. My wife says...

Paul please talk to your neurologist and / or pulmonologist asap about changing to bipap. Cpap is not recommended for pals because as...

I use miralax also but sometimes have to take 1 or 2 fiber Smart capsules. Those always work for me, sometimes to much so.

I thought this page gives a lot of sensible advice ALS Mental Health Also this on quality of life Quality of Life with ALS

make sure your vitamin D levels are good. It is is very important for immune system and mental health. I almost never see the sun and...

I use atropine eye drops. They work well for me except I need them more often now.