Recent content by Kristy84slp

  1. K

    Look at what I found for gravity feeding!

    There is also this: The Buckwheat Feeding Tube Holder Peg Tube Stand - The Buckwheat | Feeding Tube Holder This is what I use with my dad, they can custom make the size, are very responsive and ship it out quickly:)
  2. IMG_2395.jpg

    IMG_2395.jpg

  3. K

    FVC question

    Is there a way to measure forced vital capacity at home with a regular spirometer? Thanks for any input!
  4. K

    Completely Overwelmingly Sad

    I need Prozac, counseling and close friends/family. When we thought my dad had MG, my sister lived in Germany (she moved back when we found out it was ALS) and my mom, dad, sister and I started a group text. Now that my dad can't talk, texting has become his preferred method of communication...
  5. K

    New CAL

    I appreciate the support. I live in Jacksonville Fl and he lives in Tampa, Fl approx 3.5 hrs away. My mom and sister live with him and I come down on weekends. It will be difficult to stop thinking clinically and just be his daughter when all I want to do is fix it. I can't fix it. Dealing with...
  6. K

    New CAL

    Hi my name isKristen and my dad was diagnosed with bulbar ALS on September 7th of this year. It's a new diagnosis for our family as we had previously thought he had myasthenia gravis but his symptoms have been getting progressively worse. Both my sister and I are speech therapists and I...
  7. K

    Waiting for a Diagnosis

    Im a speech therapist, I work with adults who have difficulties communicating and swallowing for a living as well as my father was recently diagnosed with bulbar ALS. Dysarthria, dysphagia, and respiratory problems seem to be hallmarks of this type of disease. My own father is affected...
  8. K

    Is this ALS?

    I am a speech therapist and my dad was recently diagnosed with bulbar ALS. I treat swallowing difficulties for a living but there is not much I can do for my father's swallow except modify his diet, teach him compensatory strategies and advocate for him to consider a PEG tube. It came on...
Back
Top