Recent content by KrisS

You might consider getting a hospital bed so you can elevate him enough to relieve the stressful breathing. Hospice should be willing to provide one for him. It really helps my PALS.

Yes, a suction machine would most likely be helpful to clear out what she can cough up. We have used one for my pals for 2 years now and it has really been helpful to get anything out of his mouth that he can't spit out. It also help to get the mucus out of his mouth before it gets to his...

The description you gave of your tip fits exactly what my pals is like. I have had to replace the one on my husbands PEG twice now. It has not been difficult at all. You remove the tip by just pulling it out and attach the new one by slipping it into place. The first one we got from the Dr. that...

We use the Easy Pivot to move my husband and it does have wheels so we can move him from one room to another. I love it! He prefers us to use it over the Hoyer. For helping to get into position on his easy chair, I place a pull sheet under him and lean him forward a little and pull at the sheet...

Oh Shelly, I am so very sorry. You did such a wonderful job in everything you did for Fred, from caring for him to the wonderful tribute to him to begin this thread. You are a strong and wonderful woman. I wish you comfort. Kris

WOW! What an amazing young man! I truly appreciate what he is doing. Kudos!

I suggest you ask the MDA or ALS association loan closet if they have what is called an easypivot patient lift. We borrowed one from the ALS association and we find it is the method we like to use to get him up and move him back and forth from the bedroom to the livingroom. We also use it to get...

Hi Poppies, sorry for the delay in response. I haven't logged into the ALS forum in quite a while. I hope you have been able to help your husband in letting his loved ones know his diagnosis. Each person has to handle their feelings in their own way. My husband chose to ignore it as much as...

Just a thought. It might not work for Fred, but if noone ever mentions it, you might not ever hear of it. I found out from a therapist. I know what you mean about a simple "you are doing a great job taking care of him" lifting your spirits. You know...You are doing a great job taking care of...

Hi Shelly, Thank you for sharing your thoughts about hospice with me. I really think it would be a good move to make for Dave. Now I just have to convince him. I'm wondering if you have heard of the easy pivot lift? We have one for Dave and it works great. Without it he would have been bed...

Hi Shelly, I haven't been on the site much lately. I had to go back to work and there just isn't enough time in a day. I wanted to touch base with you and see how you are. How is Fred doing? How is the hospice service working out for you? Him? I haven't been able to talk Dave into it yet. I have...

I too have been longing for the simple pleasures of the past, dreading the future and struggling through the present. I miss the life we had together and get very sad when something, anything, triggers a memory of our pre-ALS life and I am reminded that we will never again share those special...

I'm so sorry for the loss of your dad. You are a good daughter. Sending hugs for you and your whole family.

I am researching the possibility of adding hospice to my pals care. I am told by the agencies that he can go off hospice anytime we want to for any reason. I am concerned about the hassles it could cause with switching out equipment or delays in care. Is there anyone that has been on hospice...

Welcome Martin, even though this is so hard to do, I hope this forum will be helpful to you in taking care of your mum (love the accent.) Cubcake put it very well. My husband is also ALS/FTD. He is basically the same as her pals, although I'm not sure I would say he's HAPPY but content for the...