Thank you everybody for your feedback. The EMG is limited and only explains my shoulder and neck. It's strange, when I try to stand, it feels like my knees are about to give out. I wonder if this is because of quadricep weakness. Both of my knees are equally, symmetrically affected. In addition...
Hi Wright,
Thank you so much again for helping out with my questions. This world is lucky to have people like you to take the time and be a helpful member of this forum. You are really wonderful and knowledgeable. You have helped out so many people and it's so greatly appreciated. Here are the...
And thank you Ted for being so kind. I'm not easily offended by those "other people" who make fun of me. My goal right now is to get a diagnosis from my doctor and know others' personal experiences. That's all. I just block out the others who make fun of me. I'm not really argumentative and...
TedH5, the doctor told me to wait it out until it becomes worse and come back. I'm just getting weakness and cramping in both of my legs. And my forearms as well. There's tightness too. My neighbor was diagnosed 2 years ago, she's doing fine right now, her right hand is gone but that's it. She...
I could barely stand at church yesterday because of my weak legs. Anyways, I've been reading various anecdotal/personal experience posts from PALS which makes me conclude that this disease is even more ambiguous. It took 6 years for one person to get diagnosed because their EMG's and NVC was...
Can they test your glutamate levels in your spinal cord via spinal tap and if they're elevated, it could indicate ALS or elevated Kinase levels as well.
TedH5. Well that's a very good reason to not tell me. It's just a struggle waking up everyday and not knowing what's going to happen. Is it going to get worse or better. At least with a diagnosis, you already know what's going to happen. This is tragic. I can't believe your strength and the...
trfogey. This started happening out of the blue four months ago. I woke up and stood up from my bed and my legs felt weak and trembled, especially at my knees. I noticed I couldn't stand for long periods of time because the aching was intense. It's the most intense in my knees as well as my...
Wright, thank you for your reply and your willingness to help. I'm in the process of trying get more answers from my neurologist. I will let you know once I get the results. My neurologist said they have cleared me out from autoimmune diseases via blood work. And the MRI of my brain and spinal...
TedH5,
They confirmed weakness in my neurological exam and they did do a NCV and EMG. The only comment the neurologist made was that my neurons were firing way too fast. How were you diagnosed? I would really love to know about your journey.
Trfogey. Can you tell me about your experience? And yes, I don't trust doctors opinions THAT much. But I do trust them more than the internet. I do my own research to be my own advocate. I chose ALS because the symptoms mimiced my symptoms the most. Muscle weakness in the limbs, cramping, and...