Recent content by koala82

Whoops, I meant to type life insurance.

Atsugi, Do you have any good advice regarding health insurance? I am relatively young and that's something I know little about.

Hi Forum Friends, I was tried to update to a previous thread I posted (https://www.alsforums.com/forum/do-i-have-als-als/26657-looking-advice-guidance-thank-you.html) but it is closed now. I thought I was making progress in getting a diagnosed but am back to hitting a wall or at least a...

I've also had an increase in mouth issues, which it hadn't previously mentioned to docs cause I figured it was a cold or something and was more concerned about the other stuff. Noticed it back in spring getting a choking feeling when speaking too much. It's progressed over the summer to...

Confused, saw a top NYC neuromuscular specialist today who said he thought ALS was a possibility based on my twitching and atrophy but doesn't get the sensory stuff I experienced unless I have two things at the same time.

Waiting for another EMG and then a follow up in two, however, by the way the last couple months have gone, I am worried about how much more motor loss is going to occur. My pinky and ring fingers went from a little twitch to now being curled up in less than a month. Anyway, I feel you, been to...

Weird though cause I first noticed sensory stuff, like buzzing and some tingling...that has pretty much subsided and now I just have the twitching and weakness. Saw a doc today who said he would suspect ALS however the sensory stuff doesn't make sense when he looks at the big picture. I've had...

Hi John, What are your symptoms thus far? I originally thought MS but am somewhat concerned about ALS. I am extremely in tune with my body, have been a bit of a gym rat/health nut for past couple years. Never been the hypochondriac type. In the gym there are mirrors everywhere, I can...

Nerve Conduction Test Random question about nerve conduction test as opposed to EMG. Does ALS have any characteristic findings in a NCT...such as decreased amp, etc. Or does it come out normal and EMG is abnormal. Are F-Waves and reflexes usually normal? My doc doesn't believe my previous...

Thanks everyone, your feedback is much appreciated.

The doctor who diagnosed weakness wasn't a massage therapist, he is an NYU rehab med doc specializing in nerve/muscle disorders .

Thanks, I will look into finding a good internist if this specialist doesn't work out. I'm not trying to cling to an ALS diagnosed, but thought you would be good people to run my story by in case you have heard of similar cases on here or possibly an atypical case. I personally never thought I...

Hi guys, Thanks for the responses so far and reading my essay. Two of the neuros I saw were private practice and the two others were affiliated with NYU and professors (one was the director of neuros at a hospital here). One of them was the one who told me my clawing was a result of arts...

Hi All, After months and months of weird bothersome symptoms, 4 neuro appts, various other appts, I'm here to pick your brain a bit. I've also received very little family/friend support during this time and feel pretty alone and isolated at this point. I'm sort of at a breaking point so I've...