Recent content by kmendsley

Susan, no good for computer down...sorry. Toto, those bike camel packs do work well. Actaully my brother just got one(for hiking) and all he has to do is bite down on the mouth piece and the water comes out...wouldn't neccessarily have to suck real hard. They don't cost much...

Fl, You are emotional and scared. Like mentioned before, we do not believe you have ALS...and as mentioned before...you need to see a therapist for the anxiety you have. Your problems all have stemmed from g o o g l i n g symptoms...you very well can have a pyscogenic disorder. This is real...

I meant TIA not CVA. Don't know where those letters came from...sorry about that. If your husband is just fine with it, and no progression of any kind, sounds like he has accepted it as norm and gone on with life.

Aly..you got it..all the chocolate you want. Helen, I didn't think about that part! Yeah I can imagine that would be very cold...I hate just the 30 sec. to a minute it takes me to get from the shower to the towel! I can't imagine longer than that. I thought it would be a little bit higher of a...

It will definately be hard to start up again after stopping for 3 years. They will think he is just fine and able to live with it...could have been anything to cause...but since it is steady doesn't sound like a progressive disease. Possibly a small CVA(stroke) may have caused it...might want...

Toto, humble prayers for your daughter. Arthritis can be a big problem...but hopefully she can get it managed soon. Aly, sorry you are in a funk. Hope you get out of soon. Cathy, I don't know you, but hello! A little whine on the side...those walk in/sit in tubs are Expensive! $14,000...

Daphne, sorry about your brother and father. Can you please put up the actual numbers of your EMG and NCV findings ...not just summary. Wright or Trfogey should be able to help you from there once you put in these results. From your symptoms you described though...fatigue one day, not the...

Thanks Helen but Toto was the one who put out the pancakes early in the morning yesterday...I just rewarmed them for Brunch! :) And this morning...also thanks to Toto...we have nice pastries. I will take an eclair please! And I will throw some fruit out there as well...not in season mind you in...

Nathalie, prayers for you. Aly, I hear Vinegar and/or Rubbing Alcohol will keep the ants out... put them around the entrances any unsealed area...windows, doors...etc. Sorry about the egg...don't think anything can bring that back to life. Toto offered some nice pancakes this morning...thank...

P.T. Helps me with my energy level and so do short walks....your friend should not overdo it though and should make sure they get the right assistive devices(walker, AFO..etc.) when the time comes so they are not at risk of falling. Lastly, make sure they are getting enough nutrients in their...

Allie/Chase Dad, First, let me just say Thank You for being so level headed and telling us all the details you know. It really helps to have a thorough background rather than someone who comes in freaking out and you can see it in their writing. Secondly, like Helen said, you are on the right...

Sounds like it was just time for her to get the wheelchair. I don't believe her friend's massage for her did her any harm...as long as you don't see any visible problems...her legs aren't really red or swollen right? ....the friend probably feels bad enough actually that it was sequenced like...

Air mattress works well but also support around the body with pillows. Also, leg cramps at night can be helped by taking a hot bath or shower before bed and massaging the legs a little bit before he goes to bed. Seems to help circulate the blood and reduces the pain quite a bit. Good luck to...

BTW, no hotline that I know of...and sorry for your friend's diagnosis. Also, it make take a bit for people to reply...give it 24 hrs. Most of us that answer the ?'s on this thread use assistive devices for typing so it takes a little longer :)

While you write...I was going to say that there are three threads on the forum that can help you out tremendously. One is the section you just posted in : General Discussion on ALS/MND, Tips & Gadgets, as well as CCALS or Current Caregivers of people with ALS. The first one will tell you...