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  • Hi, I know what you are going thru. Because no docs here knew what to do I did my own research and found out what I needed and went online and found an AFO that would work for me, ordered it, it worked so well I walked a whole year until the other foot started doing the same thing, that's when I went back to doc knowing something was very wrong with me, and my journey continued till I got to the bottom of it. Hoping and praying for you for more help and comfort. ((HUGS))
    Kell, We found the song I was looking for. "Christians Here for Support" Pg 103 post # 1535 Scarlet found it or her husband knew exactly what song I was talking about. Thanks for looking for me.
    Can you believe that 22years is still trolling our site with all these different names? As soon as "it" starts writing, it's so obvious! Wow... I wanted to say that on the "twitching" thread, but decided not to respond to that nitwit.

    Hope you are doing well, what happened with your neuro, I think I missed that thread. All I can say is I wish all of you had the neuros that I've had, mine have been wonderful. If yours is a jerk, go somewhere else if at all possible. They may have studied this disease, but we're the ones living with it!
    Hey there! I posted a thread but will post another thread to tell my story when I have a bit more time! Please keep in touch with me! Need everyone on here but have been searching for someone really close to my age to chat with! Sending Love!
    Have you told them your dx? Just pack your bags and come on over. :)
    I'm hanging in there. I just had my 2 week check up for the Dex trial I'm in. So far, so good. Are you considering any trials? Hugs
    Hi there. Wanted to check in on you. Has the family stepped up or removed their heads from the sand yet? Sending hugs...Michelle
    Thanks Kell Bell, this has already helped. It would still be nice if our families came around though.
    Hi Kel, Thanks for accepting me as a friend. I think Marta and I will love being as helpful as we can!
    Mary
    Hey,
    I glad I read your post today... for some reason, I havenʻt been on this site for awhile and then poof.... I seen your post...trippy... anyway, hope your parents come around because way way down the road you may need them... but we will pray for them too... Well, we are here, if you need to chat... ttyl
    Hi Kel! Thanks for your kind remarks. I hope this longest day finds you at peace. How are things in your world? Are your folks coming around? Have you considered taking them to an ALS Group meeting? That might help them understand what you're going through. Best and warmest (from the heart kind of warm) wishes for you,
    Marta
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