Recent content by kmarie

Deb, I am glad you started this thread. I so understand how you feel. I am going through the same emotions, and then feel guilty that I am concerned about my future and how ALS will affect me. He is the one that is looking the disease in the face. I only pray I will be able to give him the...

Tracy, I wish when one of us is overwhelmed the rest of us could magically appear and help. I know we all do in our hearts. I am so sorry to hear of your difficulties, my heart goes out to you. Hugs. Kay

The hardest decision of the day and takes the most energy is getting out of. I have always dealt with depression but ALS threw me for a loop. My meds aren't working the same or I'm not. Will see A Dr. About it soon. One thing that has helped me this past is something I read on a Depression...

Wednesday came around quick this week. All is about the same. Losing a little more every day or so. Emotionally I am doing better this week. Sad to hear of the loses so many have endured this last year. I hope for each of you to have more support this coming year. Emotional, physical and...

Lenore, your post was as if I wrote it myself. We got our Dx in April so I think the two of us are probably dealing with very similar emotions. My PALS does not talk about planning ahead, I bring it up about once a week and he just kinda waves it off as if we have lots of time. My concern is...

Hi Mawe, welcome. I have learned so much on this forum, I'm sure you will too. Kay

Just checking in. After I read others postings I feel so sad that everyone has to carry so much pain. I then feel shame that I am an emotional wreck and my PALS is still walking. But pain and grief is what we all have (in between the good parts we carve out of this ALS life) and ones pain is no...

My husband apologized, and explained he saw the title of the post and went to it because he thought it would be helpful to me. He subscribed before he realized it was me. He has since unsubscribed, but I still feel weird. I tried to PM someone yesterday but I couldn't figure it out. Thanks...

I do not post on the forum very often because I don't feel it is private enough to share what I am feeling. For example I saw my PALS subscribed to my thread, so now I am uncomfortable sharing. I don't know how to remove it or I would. Kay

Medication does help to control it, but stress causes it to be harder to manage. I find I become extremely irritable quickly. Kay

I will make this starting post short. I am a CALS, and I am bi-polar. I am terrified that my disorder will prevent me from giving my husband the care he deserves. He is still doing well and is more a caregiver to me than I am to him. Has or does anyone else relate to this. Thanks Kay

I don't check in as much as I should. I just feel lost and alone and don't know how to reach out. My pals is still doing okay, but slowing down. He can't stand for very long anymore. Also we moved in the last month to be near his family, for support, he warned me. We have not heard from anyone...

Katie, I am so sorry for your loss of Jon. You are in my prayers. Kay

Glad you posted Dave. I was thinking of you today and was wondering how you were getting on. Good luck with the new job. Take good care of yourself you deserve it. Kay

We finally got to a VA neurologist. Things are really falling into place. They only have a spinal cord injury clinic which we attended yesterday. We are also in an ALS clinic through another medical center. Medicare and MDA will cover the costs, thank goodness. K. Marie