I've tried to read up on these two terms, and the doctors have been no help. I have had 3 neuros and 7 EMGs. One neuro who was a DO, one ALS specialist, and a team of neuros at the Mayo Clinic just this last September. They all see the same thing in my legs and arms: evidence of reinnervation...
Thanks for the reply Davis. When yours went from 60 to 40 in 3 months, was this a noticeable difference? Did you feel out of breath or just that you couldn't pull in a full breath? Do you have other involvement like difficulty swallowing along with your breathing?
I'm having 24/7 breathing...
I can share my personal experience with the EMG/NCV tests, as I have had 7 of them total. The first one that I had done, not by a neuro, back in February 2006 had some abnormalities (I don't know what they were). My second on in May 2006, done by a neurologist, didn't show anything abnormal...
I know this has been covered a lot in the forum, but I have a few questions for those who have been having breathing difficulties due to MND. I have not been diagnosed with ALS and most likely do not have it, but I do have motor nerve involvement, confirmed by 6 EMGs and 3 neurologists (DO, ALS...
I forgot to mention that I have had 7 EMGs in since March 2006: 1st one showed something abnormal, 2nd one done by neuro didn't show anything, 3rd and subsequent ones all showed similar things with motor nerves.
Also keep in mind that even if there is motor nerve involvement, it doesn't necessarily mean that it's ALS. I have been to 3 neuros (regular, ALS Specialist, and Mayo Clinic), and all have said that they don't think I have ALS. But I do have motor nerve involvement in both arms and legs...
I have an additional question to the original question. I always see "shortness of breathe" as a symptom of diaphragm involvement with MND, but I was wondering exactly what everyone's experiences with this has been. Did you notice just feeling out of breathe, or did you just feel like you...
I too am struggling with the whole Lyme vs. MND thing. I am currently seeing an ALS specialist who says she's pretty sure I don't have ALS. She notes that she sees "chronic" reinnervation but no evidence of denervation. My entire illness started 3 years ago coming home from a camping trip in...
Thanks for sharing your story, Jamie. I didn't even go into my other symptoms before the muscle weakness started, as I respect that this is an ALS/MND forum. I hope you're not offended by this, but I have been on Lyme forums and have seen too many people think everything is Lyme Disease. I...
That's the weird thing about this entire disease I have is that all of my symptoms came on suddenly, even if the severity took months to a year to get at their peak. I was never convinced of Lyme, but I saw a doctor who was convinced. Most other doctors don't acknowledge it, which is certainly...
I posted a few months ago on this site, but I have a little more information and worsened symptoms, so I just wanted to hear other people's experience with ALS/MNDs. I had several debilitating symptoms that started 3 years ago before the motor nerve involvement, but I won't go into detail for...
2nd emg
abdomen
als
back
biopsy
breathing
breathing problems
burning
clinic
dad
diagnosed
diaphragm
driving
emg
information
insurance
lyme
lyme disease
medical
muscle
muscle biopsy
onset
pain
pressure
problems
pulmonary function test
questions
respiratory
respiratory failure
scared
swallowing
symptoms
test
wanted
weakness
wes
work
worry
I hope your muscle biopsy tells something. I had one last year after my first EMG showed abnormalities that were "non-specific". My muscle biopsy was normal. The procedure wasn't that bad. Once they numbed it up, I could barely feel the as they were going through the skin, and couldn't feel...
ceftriaxone experience
I have not been diagnosed w/ ALS (or anything yet), but I do have experience with Ceftriaxone. I started Ceftriaxone in Dec 2006 (2g/day) and had to have a PICC line put in. This is a catheter put in the arm. This might seem extreme for some, but I had a central venous...
hang in there
How long have you had all these symptoms ucla, the twitching and weakness? All I can say is hang in there buddy because from what I've heard about any neurological disease, it takes a while to diagnose. I've been going through my ordeal since July 2004 without any diagnosis or...