Recent content by kljack16

Hi Malori, I’m so sorry to welcome you to this site, but I will say it and its members have provided a lot of comfort and advice as my husband and I went on this journey with ALS. My husband’s first symptoms were severe shoulder/neck pain which progressed to weakness in his arm. I have 2...

Oh Mike - I am also so sorry to welcome you. I am a former CALS. This disease is awful, but the light in all of it is this forum and the people and support you will find. If you haven’t already, find an ALS Clinic near you and get on their rotation. They provide so much support and...

I’m so sorry Robin. I’m glad for you that it wasn’t “as awful” as you feared, and I’m glad you have your family around you. I don’t know if we ever figure things out or understand why we are here instead of where we thought, planned, hoped, dreamed we would be. I guess we just have to keep...

Thank you Mary2 💗 Love the riddle - Timothy would have enjoyed that too. I hope your trips go well and you enjoy Wicked. (I would “react” to your post with a like or love, but I don’t seem to have that option 😳).

Hi - I hope your PALS was able to have that conversation with his son and that it helped. I will say, an 18 year old of any generation (male or female) tends towards self-obsessed and denial. He just wants to be a kid and an adult and live his life. I’m sure it’s more than overwhelming for...

Thank you all for the sweet notes of encouragement. I hate that any of us are going through it, and sadly, I know exactly what you are feeling. Timothy loved to shop, especially grocery shopping followed by cooking some of the most amazing meals. I walked into one of his favorite grocery...

Thank you so much for this thread!! Today is 5 months since my husband/PALS passed. It’s tormenting reliving those last 2 weeks, mainly because we had no idea it was his last 2 weeks. In fact, less than 2 days before he died, the doctor decided we needed to go to an LTAC, which is a place you...

Thank you so much for this. I just lost my husband after 2 1/2 years with this disease. I’m struggling so much with all the “what ifs” and “should haves,” but one of the things that hurts the most is seeing all the people who are living such a full life even with this disease. I question why...

Thank you Allie 💕

Thank you 😊🙏🏻💔

I have a HOY-ADVANCE-E - Electric Patient Lift - 340 lb Capacity and split leg sling for sail. I bought it in 2021, but luckily, we didn’t need to use it until summer 2022. I paid $2800 for the lift and several hundred for the sling. Asking $1500 for the two together. I live in MS; so not...

Thank you all for your very kind words. I keep replaying it all over and over and over. I am going to hold on to your words and encouragement. The past 2.5 years have been made more bearable because of all your support. I wish all of you the best through this journey no one should have to...

Thank you Nikki.

Hi Laurie - thank you for the thorough response. I’m sorry I’m so delayed in responding to you. Before we could get into the LTAC (due to no beds), he passed away, February 10. He was still trying to decide on a trach, and leaning heavily against it. After a week in the ICU, I strongly...

Hi Laurie - thank you for the thorough response. I’m sorry I’m so delayed in responding to you. Before we could get into the LTAC (due to no beds), he passed away, February 10. He was still trying to decide on a trach, and leaning heavily against it. After a week in the ICU, I strongly...