Recent content by KLHF

  1. K

    TED talk on drug trial improvements

    Yes thanks , hopefully this research pans out and soon
  2. K

    Battle lost

    So sorry for your loss. Now at least he is free from all the constrictions of ALS. You will be with him again one day in the future. I realize this is my view but hopefully it will help you at this difficult and sad time for you and your family.
  3. K

    So many questions!

    I haven't had any.
  4. K

    So many questions!

    Just a note to tell you Rilutek is now available in Generic Riluzole. It is much less expensive. It delays the progression some, especially for Bulbar. Be sure and take as directed.
  5. K

    fasciculation abdomen

    I wanted to respond to another post of yours that was closed about time limits. You apologized for going online and searching. I think that is best way to educate yourself, don't feel bad about that.
  6. K

    Need a doctor---please help

    The nearest ALS support group is a great idea. I would look for neurologist at a teaching hospital.
  7. K

    So many questions...

    OK that worked. PBP is considered a form of ALS. I read of a study where 87% develop full blown ALS. She may not have noticed eating problems since she is eating soft foods. I'll write more tomorrow. It's late.
  8. K

    So many questions...

    Trying to figure out how this works. Wrote two replies, both disappeared. Just noticed the box at bottom. Hadn't scrolled down far enough.
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