Recent content by KJCB

Thanks to you both for your responses- very helpful, if only to remind us that we may not actually get real answers tomorrow. Patience is hard when you're watching a loved one deteriorate (I'm sure many of you can relate), but obviously we want the right diagnosis and pray that it is not ALS...

Realizing I was probably too wordy here- sorry. Perhaps I should simply ask: what questions do you wish you'd asked when you or your PALS was first diagnosed?

What a great group of people you all are -- thanks for providing this service! My sister has an important neurologist appointment on Wednesday, and I'd love some advice on the questions we should be sure to ask. She has dramatic weakness and wasting of her thighs/quads. Some weakness in her...