Recent content by kiwisally

  1. K

    Sleepiness

    As someone who has had numerous arterial blood gas drawn I would describe them as uncomfortable within the bigger picture of ALS/MND. If you really want to know I would not dismiss the test based on potential pain to you sister. Just ask for someone experienced in drawing them.
  2. K

    Anger

    I'm clairvoyant. I would have bet a million dollars that would have been his reply. So predictable. Anyone ever notice how the more someones says things like, "I am done", "this is my last post" and "you won't hear from me again" they never are, it never is and you always do?
  3. K

    Anger

    I'm not disturbed at all AL by your posts. I just don't swallow hook, line and sinker like a good girl. Some people are going to find that very funny! You don't have the first clue what goes on anywhere other than your own home and as bad as it is (and I'm not saying it's not bad mind you)...
  4. K

    Anger

    Golly....AL, truly sorry about your wife and yourself and possibly your cat. It seems you started this discussion however, why I can't fathom if you really have people who get you so worked up on ignore. Can you explain? The other thing I can't nut out is what's the fixation with people...
  5. K

    Need help with valve on tube

    I had the exact same experience. Apparently they all have idiots working for them world wide. Tell the office staff to have the gasto ring you to discuss it or better yet email you and explain why they are telling you to scheduled a procedure that would cost thousands (not to mention the...
  6. K

    Why is this Forum Here?

    vz, glad it was 6. Now the question remains...6 what? Out of how many? Where? Oh yes, just saw the title...wonder if that has anything at all to do with the number 6. Anyone remember?
  7. K

    Why is this Forum Here?

    Are you sure it was 6 vz? It could have been 5 or maybe even 7?
  8. K

    Why is this Forum Here?

    Pretty sure it's number 6... that when used everyone seems to focus on and miss the point over.
  9. K

    Why is this Forum Here?

    6, 21, 3, 11, 5, 4 Did I win Joe? Nailed it mate. Tokahfang, can I add one that seems to be consistent though the players change like the wind. 6. Provides a platform for a few, less than 6 (now we can argue that estimate as well to divert attention for the real point), to endlessly play...
  10. K

    Bipap is outdated

    Too right. Mat. 18:15-17 Moreover if thy brother shall trespass against thee, go and tell him his fault between thee and him alone: if he shall hear thee, thou hast gained thy brother. But if he will not hear thee, then take with thee one or two more, that in the mouth of two or three witnesses...
  11. K

    Bipap is outdated

    Wake up and smell the roses. FA and his band of girly-men are over on the site he recommends so highly laughing it up at the expense of people here. Naming names, plotting and egging each other on. Don't take my word for it, go look, anyone can. Defense of him or any of his ilk is totally...
  12. K

    Bipap is outdated

    Of course we all feel sorry for everyone with or dealing with MND/ALS. Of course FA should have been banned. And... of course MND/ALS doesn't give anyone carte blanche. What is unique is that the banning was done very quickly compared to historic cases. Bravo to Elaine, who I assume saw to...
  13. K

    Bipap is outdated

    Hey AL, don't mind your suggestion at all, I've had my details up before, years ago. At this point people can take what I say based on it's value rather than based on my location, education and degrees. Or my trust fund balance for that matter. But since you asked so nicely. MND/PBP mid...
  14. K

    Bipap is outdated

    So you and you alone are able to take advice from a doc and apply your personal circumstance to it and make the best decision for you personally. Got it, too right. Now afford the rest of us the same right. No need to read up on you. I've seen more than enough here, wouldn't trust you with...
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