KissJ

Thanks KissJ...acts of kindness is truly what makes worth living! I had my peg placed and am now back home...its healing nicely and I have NO PAIN! Must be all the prayers from all of you.

KissJ - I'm from McKeesport and am facing a possible ALS diagnosis though hoping it is something else. My dr is Rana at AGH who runs ALS clinic though I will look elsewhere for a 2nd/3rd opinion.

thanks kissJ, I put an update about things on the christian thread. It really is miraculous. Prayer changes things.....love you

Angel on my shoulder YES! Good idea Kiss...thanks for the prayers...The test is on Monday at 12:30.

This is great! Guess what? I am going to try for the same trial in Fresno ca where I have relatives. I will have to catch low air fares everyother month to do this. What was his breath test scores? I hope I can pass them. Well at least I know I tried to preserve the life God gave me.....((hugs))

Dear KissJ, I am up at 5 am and praying for you and your husband that you may get in! Hope is such a wonderful thing! (((hugs)))

My husband goes for evaluation tomorrow: 9/23/11 for the Dexpramipexole trail....Please, pray!! There is such hope for PALS. We had an article in our local newpaper today. My mother and I cried when we read it. Hopeful!!!

yes! they truely are angels....thanks for sharing about them on fb. they do so much for families who dont have the means to go on a special vacation together and many other practical helps too.

How are you doing? My husband was diagnosed last month. Still trying to wrap our minds around the diagnosis. Week 3 was the hardest so far. Living large and in the moment for now. Sending prayers your way.

ok, prayer request #1: I need to adapt and get used to sleeping with the bipap...I am very claustaphobic and have not been able to overcome this...so ask God of the grace I need to keep at it til its licked. Thanks!

Hello Kissj thanks for the friendship! We now will be prayer partners too, so let me know what ever you need prayers for, ok? Me too! (((hugs)))

Thank you for your kind message. I hope you and your family are doing as well as can be right now. Take care.

I can tell you that sure sounds like Spasicity.. Which I have a ton of.. It is an UMN problem often and does not indicate Bulbar issues.. More of a Spasm..

Thank you! Us too... Happy to chat on anything. Are you looking at trials? We cant decide yet. It's tough to get facts on results.

I know exactly where Greensburg is, my sister went to college there. Nice to meet you :0)