The unfortunate part about ALS is that you can't keep it away. It's relentless in it's progression. I know a bit about what you're going through - everybody handles things differently. BUT you MUST enjoy each day with your husband - you don't have a choice. Because this disease progresses the way it does, you have to create happy memories and deal with each day as it comes but be prepared in advance. You really have to educate yourselves so that when things happen (and most likely they will), you are expecting them and are ready to deal with them, as difficult as it is. I miss Bob more and more each day. Everything I do and everywhere I go is a reminder of Bob. And I think that in itself is a blessing - all these reminders. Sad and happy. We loved each other so much for more than 30 years. It's difficult. He was a great man. You take care of yourself and your husband as well as you can.