Recent content by kingsaustin

  1. K

    Hi Neil, I haven't been on the forum in quite some time but decided to get on it today and came...

    Hi Neil, I haven't been on the forum in quite some time but decided to get on it today and came across your post and profile and see you live in my neck of the woods. I'm right here in Austin. My husband, Rick, had ALS. I was his caregiver for the last 4+ yrs. I'm so sorry for what you and...
  2. K

    I need a break. But how?

    Thank God...
  3. K

    Baclofen.......help!

    Oh Amandagal5, My heart aches as I read your post. This sounds just like my husband. As a matter of fact, at his memorial service our sweet hospice folks referred to him with terms of endearment being "stubborn". We were able to laugh with warm hearts as we remembered his adamant stance on a...
  4. K

    Dis-spelling the 5 Stages of Grief

    Thank you for posting this. I imagine grief is grief. However, my loss is so different than my children's loss. One year ago today my sweet Rick had his first brush with death as he had respiratory and heart failure. This was one of the worse days of my life and God in His glorious and...
  5. K

    I need a break. But how?

    Dear Poppies, I'm truly sorry for what you're going through. It is a very sad and unfortunate situation, I know I went through what you're going through. It's so difficult because not only do you (at minimum) want to give him this independence with allowing him to make a choice about who cares...
  6. K

    I got my husband out of the house today!

    Oh Barbie, your post just makes my heart dance. Thank you for sharing such a wonderfully blessed outing. YAY!
  7. K

    Husband Diagnosed in January 2015

    Hi Pauline. I'm so sorry to have to welcome you to this community but please know this is one of the best resources to tap for camaraderie and folks who know exactly what you are going through and will be going through. Your story sounds too familiar. My husband was originally diagnosed back...
  8. K

    My husband fell last night

    Hi Amy, I really can't add any more that what the others have already posted. Just know you and your husband are in my thoughts and prayers. Your husband sounds like mine and all I can say is - if had I the opportunity to do it all over again I would be more insistent and listen to what my...
  9. K

    PLS Diagnosis

    Hi Janelle, You are in my thoughts and prayers.
  10. K

    PLS Diagnosis

    MaxEidswick, I just saw your comment about being diagnosed by Dr. Appel and the memories came flooding back. I'm not sure where you're at in your progression but I appreciate and admire your strength, tenacity, courage and generosity in sharing. I will keep you in my prayers. My husband...
  11. K

    Thank you Heather. And I'm sorry you're having to put up with the emotional roller coaster with...

    Thank you Heather. And I'm sorry you're having to put up with the emotional roller coaster with family (especially those closest to us) that comes all this. And you're right "sides" should not be taken but unfortunately lines do get drawn which (depending upon the situation) may never be able...
  12. K

    ALS Director coming to my home

    Good Sunday morning Johny. As everyone else has mentioned the ALS Association is a resource for you and your wife. The insight, resources, tools, and support they offer is for you and to help you as your wife's illness progresses. That said, you have help them help you by allowing and...
  13. K

    Rapid weight loss?

    You might want to seek an oncologist...sounds like the diabetes symptoms my husband had when he was diagnosed with diabetes 20+ years ago.
  14. K

    Soar high on your wings my love

    Hi Tillie, I remember reading your post and thinking, "what a beautiful love story...it reminds me so much of mine and my husband's love ." It is evident you and Chris had a very special love. My Rick began his eternal life 20 days ago, March 3, 2015. It has been surreal. After 35 years of...
  15. K

    Divorce

    Dear Azwxman, My heart aches as I read your post. The only image and thought(s) that come to mind as I read your post are my sweet husband's grateful eyes as he was tended to not to mention his consistent need to thank anyone and everyone who was there to help him at every turn (figuratively...
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