Recent content by Kid-Ali

Guys, Thanks for the responses. You're right, honesty is definitely the best key. You guys are so positive and helpful under the circumstances. anyway, I'm just going to wait for the Neuro appointment, it's only a month and a half away. And in the meantime I'm going to see my GP again - in 2...

Hi BethU Thanks for the response. Well, now I'm more worried about ALS than ever. 24 years old, this is ridiculous. I'm almost certain I have this. What with the fascic's, difficulty swallowing, weakness, gag-reflex-regurgitation problems, a scalloped-scaly tongue, waking up in the morning with...

any suggestions?

Robert, Thanks for the response. So your swallowing problem has never been associated with a gag reflex problem? Well I guess at least that's good. With me, I hope it's just a generalized throat problem, as opposed to something that's a sign of a much larger problem, i.e. - MND. Best wishes...

thanks for the response, awieleba. if anyone who's experienced this, or who thinks this could be related, or who even thinks it's probably not - or who has some understanding - anything - that would be great. I was ready to just let this all go and wait before the Neuro exam - but I just can't...

Is what's happening to me common in ALS or other MND? Has anyone who's been diagnosed (god bless you) experienced this? and yeah, an appt with a specialist is necessary. *and when you asked me why the neuro hadn't seen anything on an exam, it's because I haven't seen the Neuro yet. That's not...

So it's not just mornings. I just gagged and vomitted like an hour ago. Some solids actually came up this time, but not too much. The tickling & then gag feeling is almost unstoppable. Once it comes, I inevitably start to cough, then gag, then throw up. The tickle feeling is still there, so I...

can anyone relate to the gag reflex + vomit in the morning problem. It's like I can't even cough, or that'll set it off - and I vomit really, really harshly - barely anything comes out but acidy phlegm - makes it all the more horrible. Always when I get up. Thanks.

and James - when I said "doing so swell" I meant your spirits, under the circumstances! Just to clarify! also, I've noticed: using a particular limb causes more fasciculations. If I stretch my one calf out, it'll spasm more, or if I put more pressure on one leg, the calf'll spasm more. Isn't...

thanks, James. does anyone else out there have any advice? does this sound like possibly ALS?

Thanks, James. Glad to know you're doing so swell. But to reiterate: Ok, I'm really worried now. This is the like the 5-6 morning of throwing up (just mucus) - it seems I wake up with a HUGE gagging problem. I try to keep it under control, but if I cough, yawn or whatever, I can't help to just...

Ok, I'm really worried now. This is the like the 5-6 morning of throwing up (just mucus) - it seems I wake up with a HUGE gagging problem. I try to keep it under control, but if I cough, yawn or whatever, I can't help to just start puking (and puking hard - yet nothing's coming out except some...

Also to clarify I don't know if I really even believe myself that my throat problem has anything to do with what's happening to the rest of my body... but as far as the twitches - sometimes they're just so rapidfire - but cannot be seen - like they are under the skin - other times you can...

I've seen a doc at the clinic. she said that the basic neuro stuff (strength, coordination, reflexes) are in check. The twitches & spasms are usually concentrated in my legs and feet - but also occur in the one arm a lot... and sometimes even the face and temple. Sometimes I wake up in the...

how do you define widespread? in a year... my twitches progressed SLOWLY from my calf, up to my upper leg, sometimes in my foot... that lasted alone in my leg for about 4 months... then moved on to other leg... then within 8 months was in my right arm... then moved to my left arm... is that...